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Journal of Nursing ›› 2021, Vol. 28 ›› Issue (20): 30-38.doi: 10.16460/j.issn1008-9969.2021.20.030

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Experience of Spouse Caregivers in Caring for Patients in Terminal Stage: A Meta Integration

SONG Jing-yu, SHU Yao-ya, WANG Meng-meng, XU Tian-meng, YUE Peng   

  1. School of Nursing, Capital Medical University, Beijing 100069, China
  • Received:2021-05-13 Online:2021-10-25 Published:2021-11-10

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Abstract: Objective To systematically review and synthesize the need of spouse caregivers in caring for patients in terminal stage. Methods We searched databases including PubMed, The Cochrane Library, Web of Science, MEDLINE, CINAHL, EMBase, Scopus, CNKI, CBM, Wanfang Data, VIP from the inception to March 2020, to collect qualitative studies of spouse caregivers' needs in caring for patients in terminal stage. The quality of included studies was evaluated according to JBI Critical Appraisal Tool for qualitative studies (2017 edition) in Australia. The results were integrated using the pooled integration approach. Results We obtained 15 qualified studies. There were 54 findings classified into 13 categories, and then finally 3 integrated synthesized results were obtained as follows: 1. The spouse caregivers' ongoing need for physical, mental, and financial support through family and professional support included 3 categories: physiological, safety, love and belonging needs; 2. The spouse caregivers made their best to provide comprehensive care for patients in active treatment stage, which included 4 categories: safety, love and belonging, esteem, and self-actualization needs; 3.The spouse caregivers′ need to prepare for and improve the quality of patients refusing active treatment or in dying stage included 4 categories: safety, love and belonging, esteem, and self-actualization needs. Conclusion There are various needs of spouse caregivers in caring for patients in terminal stage. The government, medical institutions and the community should pay attention to the impact of diseases on spouse caregivers, and provide them with material and mental support, so as to improve the ability of care and quality of life.

Key words: terminal illness, spouse, need, qualitative research, Meta integration

CLC Number: 

  • R48
[1] 国家卫生计生委.《中国居民营养与慢性病状况报告(2015)》[R/OL].(2015-06-30)[2020-4-25].http://www.gov.cn/xinwen/2015-06/30/content_2887030.htm.
[2] Harding R, Gao W, Jackson D, et al.Comparative Analysis of Informal Caregiver Burden in Advanced Cancer, Dementia, and Acquired Brain Injury[J]. J Pain Symptom Manage,2015,50(4):445-452.DOI:10.1016/j.jpainsymman.2015.04.005.
[3] 杜鹏,王红丽.老年人日常照料角色介入的差序格局研究[J].人口与发展,2014,20(5):85-92.DOI:10.3969/j.issn.1674-1668.2014.05.011.
[4] Adelman RD, Tmanova LL, Delgado D, et al.Caregiver Burden: A Clinical Review[J]. JAMA, 2014,311(10):1052.DOI:10.1001/jama.2014.304.
[5] Ketcher D, Trettevik R, Vadaparampil ST, et al.Caring for a Spouse with Advanced Cancer: Similarities and Differences for Male and Female Caregivers[J]. J Behav Med, 2020,43(5):817-828.DOI:10.1007/s10865-019-00128-y.
[6] Buckley T, Spinaze M,Bartrop R, et al.The Nature of Death, Coping Response and Intensity of Bereavement Following Death in the Critical Care Environment[J]. Aust Crit Care,2015,28(2):64-70.DOI:10.1016/j.aucc.2015.02.003.
[7] Holtslander L, Duggleby W, Teucher U, et al.Developing and Pilot-testing a Finding Balance Intervention for Older Adult Bereaved Family Caregivers: A Randomized Feasibility Trial[J]. Eur J Oncol Nurs,2016,21:66-74.DOI:10.1016/j.ejon.2016.01.003.
[8] Egerod I, Kaldan G, Shaker SB, et al.Spousal Bereavement after Fibrotic Interstitial Lung Disease: A Qualitative Study[J].Respir Med,2019,146:129-136.DOI:10.1016/j.rmed.2018.12.008.
[9] 陈李妍. 居家临终癌症患者家庭照顾者照顾体验研究[D].广州:南方医科大学,2019.
[10] Hisamatsu M,Shinchi H,Tsutsumi Y.Experiences of Spouses of Patients with Cancer from the Notification of Palliative Chemotherapy Discontinuation to Bereavement: A Qualitative Study[J]. Eur J Oncol Nurs,2020,45:101721.DOI:10.1016/j.ejon.2020.101721.
[11] Rodenbach RA, Norton SA, Wittink MN, et al.When Chemotherapy Fails: Emotionally Charged Experiences Faced by Family Caregivers of Patients with Advanced Cancer[J]. Patient Educ Couns, 2019, 102(5):909-915.DOI:10.1016/j.pec.2018.12.014.
[12] Chung BPM, Leung D, Leung SM, et al.Beyond Death and Dying: How Chinese Spouses Navigate the Final Days with Their Loved Ones Suffering from Terminal Cancer[J]. Support Care Cancer, 2018,26(1):261-267.DOI:10.1007/s00520-017-3844-z.
[13] Judd R, Guy H, Howard RA.Caring for a Dying Partner: The Male Experience[J]. J Palliat Care,2018,34(1):5-11.DOI:10.1177/0825859718774679.
[14] Meunier-Beillard N, Ponthier N, Lepage C, et al.Identification of Resources and Skills Developed by Partners of Patients with Advanced Colon Cancer: A Qualitative Study[J]. Support Care Cancer,2018,26(12):4121-4131.DOI:10.1007/s00520-018-4283-1.
[15] Turner M, King C, Milligan C, et al.Caring for a Dying Spouse at the End of Life:‘It's One of the Things You Volunteer for When You Get Married': A Qualitative Study of the Oldest Carers' Experiences[J]. Age Ageing,2016,45(3):421-426.DOI:10.1093/ageing/afw047.
[16] Chow AY, Chan CL, Ho SM, et al.Qualitative Study of Chinese Widows in Hong Kong: Insights for Psycho-social Care in Hospice Settings[J]. Palliat Med,2016,20(5):513-520.DOI:10.1191/0269216306pm1168oa.
[17] 金丽萍,张绮.家庭式病房晚期癌症患者配偶照护感受的质性研究[J].解放军护理杂志,2016,33(20):20-23.DOI:10.3969/j.issn.1008-9993.2016.20.005.
[18] Park EM, Check DK, Yopp JM, et al.An Exploratory Study of End-of-life Prognostic Communication Needs as Reported by Widowed Fathers Due to Cancer[J]. Psychooncology, 2015,24(11):1471-1476.DOI:10.1002/pon.3757.
[19] Tabler J, Utz RL, Ellington L, et al.Missed Opportunity: Hospice Care and the Family[J].J Soc Work End Life Palliat Care,2015,11(3-4):224-243.DOI:10.1080/15524256.2015.1108896.
[20] Mossin H, Landmark B T.Being Present in Hospital When the Patient is Dying - A Grounded Theory Study of Spouses Experiences[J]. Eur J Oncol Nurs,2010,15(5):382-389.DOI:10.1016/j.ejon.2010.11.005.
[21] Jo S, Brazil K, Lohfeld L, et al.Caregiving at the End of Life: Perspectives from Spousal Caregivers and Care Recipients[J]. Palliat Support Care, 2007, 5(1):11-17.DOI:10.1017/s1478951507070034.
[22] Fisker T, Strandmark M.Experiences of Surviving Spouse of Terminally Ill Spouse: A Phenomenological Study of an Altruistic Perspective[J].Scand J Caring Sci, 2007, 21(2):274-281.DOI:10.1111/j.1471-6712.2007.00466.x.
[23] Winterling J, Wasteson E, Glimelius B, et al.Substantial Changes in Life-perceptions in Patients with Newly Diagnosed Advanced Cancer and Their Spouses[J]. Cancer Nurs,2004, 27(5):381-388.DOI:10.1097/00002820-200409000-00008.
[24] Duke S.An Exploration of Anticipatory Grief: The Lived Experience of People During Their Spouses' Terminal Illness and in Bereavement[J]. J Adv Nurs,1998,28(4):829-839.DOI:10.1046/j.1365-2648.1998.00742.x.
[25] 陈向明. 质的研究方法与社会科学研究[M].北京:教育科学出版社,2000.
[26] The Joanna Briggs Institute. Critical Appraisal Checklist for Qualitative Research[R/OL].[2020-04-25].http://joannabriggs.org/research/critical-appraisal-tools.html.
[27] 亚伯拉罕·马斯洛.动机与人格[M].北京:中国人民大学出版社,1943.
[28] Lockwood C,Munn Z, Porritt K.Qualitative Research Synthesis: Methodological Guidance for Systematic Reviewers Utilizing Meta-aggregation[J]. Int J Evid Based Healthc,2015,13(3):179-187.DOI:10.1097/XEB.0000000000000062.
[29] 胡雁. 循证护理学[M].北京:人民卫生出版社,2012.
[30] 李小妹. 护理学导论[M].北京:人民卫生出版社,2017.
[31] Kim JE, Dodd M, West C, et al.The PRO-SELF Pain Control Program Improves Patients' Knowledge of Cancer Pain Management[J]. Oncol Nurs Forum,2004,31(6):1137-1143.DOI:10.1188/04.ONF.1137-1143.
[32] 唐颖,徐晓玉,李晓玲.307例住院癌痛患者疼痛控制满意度调查[J].护理学报, 2013,20(14):24-26.DOI:10.3969/j.issn.1008-9969.2013.14.010.
[33] 李佳倩,朱冰洁,李梦媛,等.晚期癌症患者配偶恐惧疾病进展的现状及影响因素分析[J].护理学报,2019,26(14):5-9.DOI:10.16460/j.issn1008-9969.2019.14.005.
[34] 王宝莲,庞书勤,吴异兰,等.老年临终患者家属照护需求的质性研究[J].解放军护理杂志,2016,33(23):11-14.DOI:10.3969/j.issn.1008-9993.2016.23.003.
[35] 张弛,王君俏,胡雁,等.居家老年临终患者家属照顾者照顾感受的质性研究[J].护理学杂志,2011,26(19):75-78.DOI:10.3870/hlxzz.2011.19.075.
[36] 邓红莉. 180例晚期癌症病人的心理需求[J].护理实践与研究,2010, 7(1):93-94.DOI:10.3969/j.issn.1672-9676.2010.01.051.
[37] 陈璐,蔡艳芳,杨娟丽,等.癌症晚期病人直系亲属疲劳的护理干预效果研究[J].护理研究,2013,27(34):3891-3892.DOI:10.3969/j.issn.1009-6493.2013.34.023.
[38] 李德明,陈天勇,李贵芸.空巢老人心理健康状况研究[J].中国老年学杂志,2003, 23(7):405-407.DOI:10.3969/j.issn.1005-9202.2003.07.004.
[39] Humphries B, Lauzier S, Drolet M, et al.Wage Losses among Spouses of Women with Nonmetastatic Breast Cancer[J].Cancer,2020,126(5):1124-1134.DOI:10.1002/cncr.32638.[40] Masterson MP, Hurley KE, Zaider T, et al. Toward a Model of Continuous Care: A Necessity for Caregiving Partners[J]. Palliat Support Care,2015, 13(5):1459-1467.DOI10.1017/S1478951515000231.
[41] Weerakkody I, Hales S, Fernandes S, et al.The Quality of Dying and Death in a Residential Hospice[J].J Pain Symptom Manage, 2018, 56(4):567-574.DOI:10.1016/j.jpainsymman.2018.07.004.
[42] Manne SL, Siegel S, Kashy D, et al.Cancer-specific Relationship Awareness, Relationship Communication, and Intimacy among Couples Coping with Early-stage Breast Cancer[J]. J Soc Pers Relat,2013,31(3):314-334.DOI:10.1177/0265407513494950.
[43] 刘艺. 宁养患者心理抚慰的社会工作介入[D].吉林:长春工业大学,2016.
[44] 孙苏宁. 终末期癌症病人恐惧心理的护理[J].肿瘤研究与临床,1995, 7(1):65-66.
[45] 张春明. 老年患者家庭式临终关怀的护理体会[J].世界最新医学信息文摘,2017,17(7):168-170.
[46] Ornstein KA, Aldridge MD, Garrido MM, et al.The Use of Life-sustaining Procedures in the Last Month of Life Is Associated with More Depressive Symptoms in Surviving Spouses[J]. J Pain Symptom Manage,2017,53(2):178-187.DOI:10.1016/j.jpainsymman.2016.08.023.
[47] Yopp JM, Deal AM, Nakamura ZM, et al.Psychological and Parental Functioning of Widowed Fathers:The First Two Years[J]. J Fam Psychol,2019,33(5):565-574.DOI:10.1037/fam0000528.
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