以质量求发展，以服务铸品牌

Journal of Nursing ›› 2023, Vol. 30 ›› Issue (9): 13-17.doi: 10.16460/j.issn1008-9969.2023.09.013

Previous Articles     Next Articles

Experience of readiness for discharge of family caregivers of children with liver transplantation: a qualitative study

LV Lu-yanga, WANG Hua-fena, LU Fang-yanb, WANG Yanb, JIANG Shu-yingb   

  1. 1. Dept. of Nursing Administration;
    2. Liver Transplantation Center, the First Affiliated Hospital, Zhejiang University School of Medicine, Hangzhou 310003, China
  • Received:2022-11-21 Online:2023-05-10 Published:2023-06-08

PDF (PC)

589

Like

Abstract: Objective To understand the experience of readiness for discharge of family caregivers of children with liver transplantation, to provide reference for the development of the discharge planning for children with liver transplantation and for the improvement of nursing system for children with liver transplantation in China. Methods We employed a phenomenological method in this study. Purposive sampling was used to recruit 14 family caregivers of children with liver transplantation from a tertiary grade-A hospital in Hangzhou, Zhejiang Province. Semi-structured interviews with the caregivers were conducted and Colaizzi 7-step analysis was used to sort out the data. Results Four themes were extracted, including the differences of discharge decision-making experience, the complexity of discharge emotional experience, the perception of poor discharge coping ability and insufficient coping resources, and the demand for home care support after discharge. Conclusion Nurses should proactively assess the readiness for discharge of family caregivers of children who have undergone liver transplantation and provide them with assistance in preparing for the transition from hospital to home care including psychological support, knowledge sharing, skill development, and emotional support, so as to ensure a safe transition for the family caregivers of these children.

Key words: liver transplantation, readiness for discharge, pediatric nursing, qualitative research

CLC Number: 

  • R657.3
[1] 高伟. 小儿肝移植的适应证[J]. 临床小儿外科杂志, 2017, 16(2):121-126. DOI:10.3969/j.issn.1671-6353.2017.02.005.
[2] Pham YH, Miloh T.Liver transplantation in children[J]. Clin Liver Dis, 2018,22(4):807-821.DOI:10.1016/j.cld.2018.06.004.
[3] 高伟. 儿童肝移植的手术技术革新[J]. 器官移植, 2022, 13(3):296-302. DOI:10.3969/j.issn.1674-7445.2022.03.003.
[4] 中国研究型医院学会加速康复外科专业委员会.儿童肝移植术后感染诊治专家共识[J]. 中华外科杂志, 2022, 60(3): 193-202. DOI:10.3760/cma.j.cn112139-20211216-00603.
[5] 易述红,杨扬,陈规划.多学科合作,努力达到儿童肝移植的最佳疗效[J]. 器官移植, 2020, 11(4):431-434. DOI:10.3969/j.issn.1674-7445.2020.04.001.
[6] 吕璐洋,王华芬,卢芳燕等.住院患儿家庭出院准备度评估工具的研究进展[J].中华护理杂志,2022,57(4):507-512.DOI:10.3761/j.issn.0254-1769.2022.04.019.
[7] 黄莹,杨巧玲,张宇,等.儿童肝移植非计划再入院的影响因素分析及护理对策[J]. 循证护理, 2022, 8(9):1229-1232. DOI:10.12102/j.issn.2095-8668.2022.09.018.
[8] Weiss ME, Sawin KJ, Gralton K, et al.Discharge teaching, readiness for discharge, and post-discharge outcomes in parents of hospitalized children[J].J Pediatr Nurs, 2017, 34: 58-64. DOI:10.1016/j.pedn.2016.12.021.
[9] Moradi S, Arshdi-Bostanabad M, Seyedrasooli A, et al.The effect of empowerment program on maternal discharge preparation and neonatal length of hospital stay: a randomized controlled trial[J].Iran J Nurs Midwifery Res, 2018, 23(3):172-177. DOI:10.4103/ijnmr.IJNMR_110_17.
[10] 刘明. Colaizzi七个步骤在现象学研究资料分析中的应用[J]. 护理学杂志, 2019, 34(11):90-92. DOI:10.3870/j.issn.1001-4152.2019.
[11] Li L, Yang L, Dong C, et al.Psychosocial assessment of donors in pediatric living donor liver transplantation: a systematic review[J]. Transplant Proc, 2021, 53(1):3-15. DOI:10.1016/j.transproceed.2020.02.150.
[12] Bellini MI, Lauro A, D'Andrea V, Marino IR. Pediatric liver transplantation:long-term follow-up issues[J].Exp Clin Transplant,2022,20(Suppl 3):27-35.DOI:10.6002/ect.PediatricSymp2022.L16.
[13] 宋运莲, 丁维燕, 邵荣雅, 等. 肝移植术后患儿腹泻的研究进展[J]. 全科护理, 2023, 21(3):346-350.
[14] 杨巧玲,李琳,黄萍,等.儿童肝移植随访的现状及展望[J]. 国际护理学杂志,2020,39(21):4022-4026. DOI:10.3760/cma.j.cn221370-20191008-01234.
[15] 宋玉伟, 朱志军, 孙丽莹, 等. 儿童肝移植术后生长发育的临床研究[J]. 器官移植, 2015, 6(4):235-239. DOI:10.3969/j.issn.1674-7445.2015.04.006.
[16] 罗曦, 邹萍. 胆道闭锁患儿家长治疗决策困境的质性研究[J]. 中华护理杂志, 2019, 54(11):1630-1633. DOI:10.3761/j.issn.0254-1769.2019.11.006.
[17] Lerret SM, Haglund KA, Johnson NL.Parents' perspectives on shared decision making for children with solid organ transplants[J]. J Pediatr Health Care, 2016, 30(4):374-380. DOI:10.1016/j.pedhc.2015.10.001.
[18] 邵舒颖, 李桃, 刘卫娟. 癌症患儿代理人决策冲突的研究进展[J]. 护理学杂志, 2021, 36(16):92-95. DOI:10.3870/j.issn.1001-4152.2021.16.092.
[19] Simeone S, Platone N, Perrone M, et al.The lived experience of parents whose children discharged to home after cardiac surgery for congenital heart disease[J].Acta Biomed, 2018, 89(4-S): 71-77. DOI:10.23750/abm.v89i4-S.7223.
[20] 李京. 肝移植术后患者在住院不同时间点的照顾者的焦虑水平状况及原因分析[D].长春:长春中医药大学,2019. DOI:10.26980/d.cnki.gcczc.2019.000386.
[21] 何婷, 滕小芸, 杨巧玲, 等.儿童肝移植供体照顾负担现状及影响因素分析[J].中国医药导报, 2021, 18(35):72-75.
[22] 侯晓梅. 家庭赋权干预对肠造口患儿照顾者自我效能、应对方式及心理状态的影响[J].中国健康心理学杂志, 2021, 29(3):334-338. DOI:10.13342/j.cnki.cjhp.2021.03.003.
[23] Lerret SM, White-Traut R, Medoff-Cooper B, et al.Pilot study protocol of a mHealth self-management intervention for family members of pediatric transplant recipients[J]. Res Nurs Health, 2020, 43(2):145-154.DOI:10.1002/nur.22010.
[24] Bastos Tavares AP, Seixas LBPMG, Jayme CLW, et al.Pediatric liver transplantation: caregivers' quality of life[J]. Pediaetr Gastroenterol Hepatol Nutr,2022, 25(6):489-499. DOI:10.5223/pghn.2022.25.6.489.
[25] Bilhartz JL, Shieck VL.Pediatric liver transplantation: Unique concerns for the critical care team[J]. Crit Care Nurs Q,2016,39(3):281-295.DOI:10.1097/CNQ.0000000000000121.
[26] 谢新宝. 儿童肝移植围手术期管理[J]. 中国实用儿科杂志, 2022, 37(7):504-508. DOI:10.19538/j.ek2022070607.
[27] 朱小川, 张先红, 范娟,等. 早产儿出院后父母应对能力提升的最佳证据总结[J].护理学杂志,2023,38(3):13-17.DOI:10.3870/j.issn.1001-4152.2023.03.013.
[28] Lerret SM, Flynn E, White-Traut R, et al.Acceptability of an mHealth Family self-management intervention (myFAMI) for pediatric transplantation families: qualitative focus[J]. JMIR Nurs, 2022, 5(1):e39263. DOI:10.2196/39263.
[29] Lerret SM, Weiss ME, Stendahl G, et al.Transition from hospital to home following pediatric solid organ transplant: qualitative findings of parent experience[J]. Pediatr Transplant,2014, 18(5):527-537. DOI:10.1111/petr.12269.
[30] Yayan EH, Düken ME.A comparison of caregiving burden and social support levels of parents of children undergoing liver transplant[J]. J Pediatr Nurs, 2019, 47:45-50. DOI:10.1016/j.pedn.2019.04.022.
[1] TAN Wen-xuan, ZHANG Rong, ZHANG Li-li, WANG Wei, SHAO Yan-hong, FANG Qing-hong, ZHU Jin. Surgical decision dilemma among heart transplant patients: a phenomenological study [J]. Journal of Nursing, 2025, 32(3): 69-73.
[2] CAO Min, ZHANG Pei-li, HOU Xiao-ya, GAO Chao-yue, GUO Lin-fang, LI Ying. Nutritional care experience of caregivers of colorectal cancer patients undergoing chemotherapy based on ABC-X model: a qualitative study [J]. Journal of Nursing, 2025, 32(2): 13-18.
[3] WANG Yu, ZHAO Hui-jie, XIAO Meng-wei, FAN Shuo-ning, SUN Jia-li, WANG Ke-xin, SU Xuan, YANG Ying-rui. Experiences and coping styles during silicone oil filling in patients with diabetic retinopathy: a qualitative study [J]. Journal of Nursing, 2025, 32(1): 68-72.
[4] CAO Yi-li, WANG Ling, WANG Can, CHEN Yan-hua, QIN Hong-yun. Resource orientation of family members of hospitalized patients with schizophrenia: a qualitative study [J]. Journal of Nursing, 2024, 31(8): 74-78.
[5] ZHANG Lu-xin, JIAO Yan-chao, WEN Xi, TIAN Li, WANG Ting, TIAN Feng-mei, LI Hui-ling. Qualitative study on learning experience of nursing undergraduates in synchronous classes of MOOC Westbound Program [J]. Journal of Nursing, 2024, 31(6): 30-34.
[6] DENG Yue, HU Yu-fan, WANG Ran, ZHANG Yuan-xing, WANG Fang, YUAN Ping, CHEN Lu. Qualitative studies on experience and needs of elderly patients receiving telemedicine care: a Meta-integration [J]. Journal of Nursing, 2024, 31(5): 50-55.
[7] SHANG Li, HUANG Fei, CHENG Li, ZHANG Tao-tao, WANG Hong-mei. Learning experience in adapting comics into sitcoms of nursing undergraduates：a qualitative study [J]. Journal of Nursing, 2024, 31(3): 25-29.
[8] YANG Xiao-yan, WANG Jing, YANG Ya-ping. Knowledge, attitudes, and behaviors of nurses in Shanghai nursing homes regarding incontinence-associated dermatitis: a qualitative study [J]. Journal of Nursing, 2024, 31(24): 18-22.
[9] LI Jia-qi, YE Xiang-hong, ZUO Jun-tao, XU Yao, YAO Hong-lin. Qualitative research on nutritional support decision-making process for patients with end-stage disease: a Meta-synthesis [J]. Journal of Nursing, 2024, 31(2): 53-58.
[10] GU Yu-fang, GU Zhi-e, CHEN Ying-zhu, YU Chuan-shan, LIU Xing-yu, DING Kun. Clinical nurses’ experiences in decision-making on resigning for postgraduate studies based on field theory: a qualitative study [J]. Journal of Nursing, 2024, 31(18): 1-6.
[11] JIANG An-qi, FU Hong-ying, SONG Yuan-yuan, CHEN Xu, ZHAI Qiang-xin, GE Rui-yu. Teaching experience of instructors of nurse specialist of wound care in Guizhou province: a qualitative study [J]. Journal of Nursing, 2024, 31(17): 13-16.
[12] HU Si-hong, TAO Yan-lin, LI Shan-shan, WANG Ming-zhu, WANG Qin. Characteristic elements of core competence of expert patients in peritoneal dialysis: a qualitative research [J]. Journal of Nursing, 2024, 31(16): 1-5.
[13] SHEN Wei, QIN Yue-lan, LIU Wang-xing, HU Zheng-zhong, LIU Feng, YAO Ru-fan, YANG Ke, JIANG Wen-hui. Qualitative research on development of core competence of hemodialysis expert patients [J]. Journal of Nursing, 2024, 31(14): 13-18.
[14] QIAN Da-di, ZHOU Hong-zhen, WANG Hong-xiao, DENG Shui-juan, LONG Hao. Experience of undergoing gamma knife radiosurgery in patients with intracranial tumor: a qualitative research [J]. Journal of Nursing, 2024, 31(11): 6-11.
[15] SHI Xi-wei, LIAO Yong-zhen, WU ying, WEN jing, CHEN Ke-yi, CONG li. Effect of rain classroom-based precision teaching model in vocational Pediatric Nursing [J]. Journal of Nursing, 2024, 31(11): 18-22.
Viewed
Full text


Abstract

Cited
  Shared   
No Suggested Reading articles found!