以质量求发展，以服务铸品牌

护理学报 ›› 2019, Vol. 26 ›› Issue (19): 1-6.doi: 10.16460/j.issn1008-9969.2019.19.001

• 研究生园地 •    下一篇

脑卒中居家主要照顾者需求及影响因素分析

黄姝绮, 袁平乔, 李思琴, 杨蓉   

  1. 四川大学华西医院 神经内科,四川 成都 610041
  • 收稿日期:2019-05-27 出版日期:2019-10-10 发布日期:2020-07-20
  • 通讯作者: 杨 蓉（1965-）,女,四川成都人,本科学历,主任护师,科护士长。E-mail:hxyangrong2004@126.com
  • 作者简介:黄姝绮（1995-）,女,四川绵阳人,本科学历,硕士研究生在读。
  • 基金资助:
    四川省科技计划重点研发项目（2017SZ0007）

Needs of Main Caregivers of Home Stroke Survivors, Its Influence Factors

HUANG Shu-qi, YUAN Ping-qiao, LI Si-qin, YANG Rong   

  1. Dept. of Neurology, West China Hospital, Chengdu 610041, China
  • Received:2019-05-27 Online:2019-10-10 Published:2020-07-20

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摘要： 目的 了解脑卒中居家主要照顾者需求现状,并分析其影响因素。方法 纳入2018年9月—2019年1月在四川大学华西医院神经内科门诊就诊的脑卒中患者及其主要照顾者298对,并收集患者及其主要照顾者一般资料,运用脑卒中居家主要照顾者需求量表评估照顾者需求。应用多因素Logistic回归分析分别探索患者、照顾者资料与照顾者需求的关系。结果 多因素分析显示患者性别（OR=0.558,95%CI：0.329~0.945）、辅助照顾者人数（OR=7.212,95%CI：1.439~36.137）、照顾者学历（OR=0.273,95%CI：0.103~0.726）是脑卒中居家主要照顾者信息需求的独立影响因素;辅助照顾者人数（OR=2.467,95%CI：1.162~5.240）、患者家庭人均月收入（OR=2.470,95%CI：1.216~5.019）、照顾者与患者的关系（OR=3.322,95%CI：1.245~8.868）是脑卒中居家主要照顾者照顾技能需求的独立影响因素;辅助照顾者人数（OR=4.497,95%CI：1.130~22.110）是脑卒中居家主要照顾者社会支持需求的独立影响因素;照顾者年龄（OR=3.348,95%CI：1.021~10.983）及辅助照顾者人数（OR=14.200,95%CI：2.521~79.988）是脑卒中居家主要照顾者整体需求的独立影响因素。结论 脑卒中居家主要照顾者需求程度由高到低排序依次为信息需求、社会支持需求、照顾者个人需求、照顾技能需求。女性患者、家庭人均月收入较高的患者、学历较高的照顾者、辅助照顾者者较多以及照顾者的子女是患者主要照顾者需求的独立影响因素。提示医护人员应重点关注此类人群,及时提供相应的服务,以期减少照顾者负担。

关键词: 脑卒中, 主要照顾者, 居家照顾, 照顾需求

Abstract: Objective To investigate the needs of main caregivers of home stroke patients and analyze its influence factors. Methods A total of 298 stroke patients and their main caregivers from the Department of Neurology, West China Hospital from September 2018 to January 2019 were enrolled. General information of patients and their main caregivers was collected, and the scale of main caregivers of stroke patients' needs was used to evaluate their needs. Univariate analysis was used to explore the relationship between the data of patients and caregiver and caregiver needs. Results Multivariate analysis showed patient gender (OR=0.558, 95%CI:0.329~0.945), number of assisted caregivers (OR=7.212, 95%CI:1.439~36.137) and education background of caregivers (OR=0.273, 95%CI:0.103~0.726) were independent influencing factors for the information need of the main caregivers; number of assisted caregivers (OR=2.467,95%CI:1.162~5.240), average monthly income of patients (OR=2.470,95%CI:1.216~5.019), relationship between caregrivers and the patient (OR=3.322, 95%CI:1.245~8.868) were independent influencing factors of care need of the main caregivers; number of assisted caregivers(OR=4.497,95%CI:1.130~22.110) was the independent influcencing factor of social support need of caregivers; age of the caregiver (OR=3.348, 95%CI:1.021~10.983) and number of assisted caregivers（OR=14.200,95%CI:2.521~79.988）were independent influencing factors of needs of primary caregivers. Conclusion The needs of the main caregivers of home stroke patients ranking from high to low are information need, social support need, caregivers' personal need and care skill need. Female patients, patients with higher per monthly income, well-educated caregivers, more assisted caregivers and children of caregivers are independent influencing factors of the main caregivers and medical staff should pay more attention to these groups and provide corresponding service in time so as to reduce the burden of caregivers.

Key words: stroke, main caregiver, home care, care needs

中图分类号: 

  • R473.5
[1] 陈伟伟,高润霖,刘力生,等. 《中国心血管病报告2016》概要[J]. 中国循环杂志, 2017,32(6):521-530. DOI:10.3969/j.issn.1000-3614.2017.06.001.
[2] The L N.The Shared Burden of Stroke and Dementia[J]. Lancet Neurol, 2016, 15(9):891.DOI:10.1016/S1474-4422(16)30132-6.
[3] Hardicre N K, Crocker T F, Wright A, et al.An Intervention to Support Stroke Survivors and Their Carers in the Longer term (LoTS2Care): Study Protocol for the Process Evaluation of a Cluster Randomised Controlled Feasibility Trial[J]. Trials, 2018,19(1):368.DOI:10.1186/s13063-018-2683-7.
[4] 张天丽. 脑卒中患者及其照顾者需求现状调查分析[D]. 天津:天津医科大学, 2017.
[5] 赵雪萍,薛小玲. 脑卒中病人家属照顾者照顾负荷的质性研究[J]. 护理研究, 2011,25(2):415-417. DOI:10.3969/j.issn.1009-6493.2011.05.017.
[6] 袁平乔. 脑卒中居家主要照顾者需求量表构建研究[D]. 成都:四川大学, 2019.
[7] Li X, Xia X, Wang P, et al.Needs and Rights Awareness of Stroke Survivors and Caregivers: A Cross-sectional, Single-centre Questionnaire Survey[J].BMJ Open,2017,7(10):e13210.DOI:10.1136/bmjopen-2016-013210.
[8] Denham A, Wynne O, Baker A L, et al.“This is Our Life Now. Our New Normal”: A Qualitative Study of the Unmet Needs of Carers of Stroke Survivors[J]. PLoS One,2019,14(5):e216682.DOI:10.1371/journal.pone.0216682.
[9] Shaffer K M, Riklin E, Jacobs J M, et al.Mindfulness and Coping are Inversely Related to Psychiatric Symptoms in Patients and Informal Caregivers in the Neuroscience ICU: Implications for Clinical Care[J]. Crit Care Med, 2016,44(11):2028-2036.DOI:10.1097/CCM.0000000000001855.
[10] Choi K W, Shaffer K M, Zale E L, et al.Early Risk and Resiliency Factors Predict Chronic Posttraumatic Stress Disorder in Caregivers of Patients Admitted to a Neuroscience ICU[J]. Crit Care Med, 2018,46(5):713-719.DOI:10.1097/CCM.0000000000002988.
[11] McAdam J L, Dracup K A, White D B, et al. Symptom Experiences of Family Members of Intensive Care Unit Patients at High Risk for Dying[J]. Crit Care Med, 2010,38(4):1078-1085.DOI:10.1097/CCM.0b013e3181cf6d94.
[12] Qiu Y, Li S.Stroke: Coping Strategies and Depression among Chinese Caregivers of Survivors during Hospitalisation[J]. J Clin Nurs, 2008,17(12):1563-1573.DOI:10.1111/j.1365-2702.2007.02156.x.
[13] 付凌敏. 南昌市脑卒中患者社区护理需求调查及其影响因素分析[D]. 南昌:南昌大学, 2011.
[14] Beach S R, Schulz R.Family Caregiver Factors Associated with Unmet Needs for Care of Older Adults[J]. J Am Geriatr Soc, 2017,65(3):560-566.DOI:10.1111/jgs.14547.
[15] 曹建勋,陈雪萍. 脑卒中患者的家庭照顾者生活状况研究进展[J]. 护理学报, 2010,17(10A):9-11. DOI:10.16460/j.issn1008-9969.2010.19.009.
[16] 刘桂萍,周玉贞,吴全培. 康复期脑卒中住院患者照顾者疾病负担调查及影响因素分析[J]. 护理学报, 2012,19(3A):29-32. DOI:10.16460/j.issn1008-9969.2012.05.008.
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