目的 对脑卒中患者支持性照护需求相关评估工具进行范围综述,为今后相关研究提供参考依据。方法 系统检索中英文数据库,检索时限为建库至2023年3月。筛选符合纳入标准的脑卒中患者支持性照护需求评估工具,提取纳入文献的一般信息(包括文题、作者、年份、国家)和评估工具特点(包括工具研制方法、工具名称、工具内容以及信效度等)。结果 最终纳入10篇文献,工具类型主要为问卷类和量表类,涉及脑卒中患者多个方面的需求。结论 脑卒中患者支持性照护需求评估工具种类较多,但多偏重单一的维度,缺乏针对全面的脑卒中患者支持性照护需求的评估工具,未来可结合现有的工具优势研制脑卒中患者支持性照护需求评估工具。
Abstract
Objective To conduct a scoping review of assessment tools related to the supportive care needs of stroke patients, and to provide reference for future studies. Methods A systematic search of Chinese and English databases was conducted with a retrieval period spanning from the inception to March 2023. We screened the assessment tools for supportive care needs of stroke patients that met the inclusion criteria, and extracted the general information of the included literature (including the title, author, publishing year, and country) and the characteristics of the assessment tools (including development method, name, content, and the reliability and validity, etc.). Results Ten studies were finally included, and the types of tools were mainly questionnaires and scales, covering diverse aspects of the needs of stroke patients. Conclusion There are many types of tools for assessing the supportive care needs of stroke patients, but most of them are biased towards a single dimension, and there is a lack of tools for assessing the supportive care needs of stroke patients in a comprehensive manner, so future tools for assessing the supportive care needs of stroke patients could be developed with the combination of the advantage of existing tools.
关键词
脑卒中 /
支持性照护需求 /
评估工具 /
范围综述
Key words
stroke /
supportive care need /
assessment tool /
scoping review
{{custom_sec.title}}
{{custom_sec.title}}
{{custom_sec.content}}
参考文献
[1] 王陇德, 彭斌, 张鸿祺, 等. 《中国脑卒中防治报告2020》概要[J]. 中国脑血管病杂志, 2022, 19(2):136-144. DOI:10.3969/j.issn.1672-5921.2022.02.011.
[2] Ramos-Lima MJM, Brasileiro IC, Lima TL, et al.Quality of life after stroke: impact of clinical and sociodemographic factors[J]. Clinics (Sao Paulo, Brazil), 2018(73): e418. DOI:10.6061/clinics/2017/e418.
[3] Bierhals C, Low G, Paskulin LMG.Quality of life perceptions of family caregivers of older adults stroke survivors: a longitudinal study[J]. Appl Nurs Res, 2019(47):57-62. DOI:10.1016/j.apnr.2019.05003.
[4] Tamrat EG, Gufue ZH, Getachew S, et al.Factors associated with the longer-term unmet supportive care needs of stroke survivors in Ethiopia: a multicentre cross-sectional study[J]. BMJ Open,2022, 12(1):e053579.DOI:10.1136/bmjopen-2021-053579.
[5] Nobleza COS.Preferences of young stroke survivors to meet their unique needs: it is time to listen[J]. Neurology, 2021, 96(13): E1809-E11. DOI:10.1212/WNL.0000000000011665.
[6] Abrahamson V,Wilson PM.How unmet are unmet needs post-stroke? A policy analysis of the six-month review[J]. Bmc Health Serv Res 2019,19(1):480.DOI: 10.1186/s12913-019-4210-2.
[7] De Simoni A, Shanks A, Balasooriya-Smeekens C, et al.Stroke survivors and their families receive information and support on an individual basis from an online forum: descriptive analysis of a population of 2348 patients and qualitative study of a sample of participants[J]. Bmj Open, 2016, 6(4):e010501. DOI: 10.1136/bmjopen-2015-010501.
[8] Mckevitt C, Fudge N, Redfern J, et al.Self-reported long-term needs after stroke[J]. Stroke, 2011, 42(5): 1398-403. DOI: 10.1161/STROKEAHA.110.598839.
[9] Sapuppo D, Bernhardt J, Carvalho LB, et al.Self-evaluation of personal needs by community-living young stroke survivors using an online English language questionnaire[J]. Disabil Rehabil, 2023, 45(11): 1830-1835. DOI: 10.1080/09638288.2022.2076935.
[10] Fitch MI.Supportive care framework[J]. Can Oncol Nursing journal,2008,18(1):6-24.DOI:10.5737/1181912x181614.
[11] Arksey H, O'malley L.Scoping studies: towards a methodological framework[J]. Int J Soc Res Methodol, 2005, 8(1): 19-32. DOI:10.1080/1364557032000119616.
[12] 赵领珠, 陈艳, 李小妹. 脑卒中病人康复需求量表的研制与信效度检验[J]. 护理研究, 2019, 33(12): 2040-2044. DOI:10.12102/j.issn.1009-6493.2019.12.009.
[13] 黄海珊, 汪晖, 李玲, 等. 脑卒中患者适时需求调查表的编制及信效度研究[J]. 神经损伤与功能重建, 2019, 14(1): 6-10. DOI:10.16780/j.cnki.sjssgncj.2019.01.002.
[14] 崔会, 王春华, 张延红, 等. 缺血性脑卒中患者护理需求评估问卷的编制[J]. 中华护理教育, 2018, 15(11): 810-814. DOI:10.3761/j.issn.1672-9234.2018.11.002.
[15] Hu XL, Jonzen K, Karlsson M, et al.Assessments of a novel digital follow-up tool Rehabkompassen(R) to identify rehabilitation needs among stroke patients in an outpatient setting[J].Digital Health,2022(8):20552076221104662.DOI:10.1177/20552076221104662.
[16] Rothwell K, Boaden R, Bamford D, et al.Feasibility of assessing the needs of stroke patients after six months using the GM-SAT[J]. Clin Rehabil, 2013, 27(3): 264-271. DOI:10.1177/0269215512457403.
[17] Li X, Xia XS, Wang PL, et al.Needs and rights awareness of stroke survivors and caregivers:a cross-sectional, single-centre questionnaire survey[J]. BMJ Open, 2017, 7(10):e013210. DOI: 10.1136/bmjopen-2016-013210.
[18] Philp I, Brainin M, Walker MF, et al.Development of a poststroke checklist to standardize follow-up care for stroke survivors[J]. J Stroke Cerebrovasc Dis, 2013, 22(7): E173-E180. DOI:10.1016/j.jstrokecerebrovasdis.2012.10.016.
[19] Forster A, Murray J, Young J,et al.Validation of the longer-term unmet needs after stroke (LUNS) monitoring tool: a multicentre study[J]. Clin Rehabil, 2013, 27(11): 1020-1028. DOI:10.1177/0269215513487082.
[20] Kersten P, Mclellan L, George S, et al.The Southampton Needs Assessment Questionnaire (SNAQ): a valid tool for assessing the rehabilitation needs of disabled people[J]. Clin Rehabil, 2000,14(6):641-650.DOI:10.1191/0269215500cr373oa.
[21] Finch E, Foster M, Fleming J, et al.Exploring changing needs following minor stroke[J]. Health Soc Care Community, 2020, 28(2): 347-356. DOI:10.1111/hsc.12866.
[22] 李丽, 王清. 基于扎根理论的急性脑卒中患者延迟就诊应对模型的构建[J]. 护理学杂志, 2016, 31(17): 21-24. DOI:10.3870/j.issn.1001-4152.2016.17.021.
[23] 徐勤勤, 单伟超, 王颖, 等. 心肌梗死患者延续期护理知识需求问卷的编制[J]. 中华现代护理杂志, 2016, 22(10): 1392-1395.DOI:10.3760/cma.j.issn.1674-2907.2016.10.016.
[24] Andrew NE, Kilkenny M, Naylor R, et al.Understanding long-term unmet needs in Australian survivors of stroke[J]. Int J Stroke, 2014(9 Suppl A100): 106-112. DOI:10.1111/ijs.12325.
[25] Gordon AL, Nguyen L, Panton A, et al.Self-reported needs after pediatric stroke[J]. Eur J Paediatr Neurol, 2018, 22(5): 791-796. DOI:10.1016/j.ejpn.2018.06.003.
[26] Kjörk EK, Carlsson G, Sunnerhagen KS, et al.Experiences using the poststroke checklist in Sweden with a focus on feasibility and relevance: a mixed-method design[J]. BMJ Open, 2019, 9(5): e028218. DOI:10.1136/bmjopen-2018-028218.
[27] Groeneveld IF, Arwert HJ,Goossens PH, et al.The Longer-term Unmet Needs after Stroke Questionnaire: cross-cultural adaptation, reliability, and concurrent validity in a Dutch population[J]. J Stroke Cerebrovasc Dis, 2018, 27(1):267-275.DOI:10.1016/j.jstrokecerebrovasdis.2017.08.043.
[28] Patchwood E, Woodward-Nutt K, Rothwell K, et al.Six-month reviews for stroke survivors: a study of the modified Greater Manchester Stroke Assessment Tool with care home residents[J]. Clin Rehabil, 2020, 34(5): 677-687. DOI:10.1177/0269215520912515.
[29] Ward AB, Chen C, Norrving B, et al.Evaluation of the Post Stroke Checklist: a pilot study in the United Kingdom and Singapore[J]. Int J Stroke, 2014(9): 76-84. DOI:10.1111/ijs.12291.
[30] Tamrat EG, Gufue ZH, Getachew S, et al.Factors associated with the longer-term unmet supportive care needs of stroke survivors in Ethiopia: a multicentre cross-sectional study[J]. BMJ Open, 2022, 12(1): e053579. DOI:10.1136/bmjopen-2021-053579.
[31] Zawawi NSM, Aziz NA, Fisher R, et al.The unmet needs of stroke survivors and stroke caregivers: a systematic narrative review[J]. J Stroke Cerebrovasc Dis, 2020, 29(8): 104875. DOI:10.1016/j.jstrokecerebrovasdis.2020.104875.
[32] Kamalakannan S, Gudlavalleti Venkata M, Prost A, et al. Rehabilitation needs of stroke survivors after discharge from hospital in India[J]. Arch Phys Med Rehabil, 2016, 97(9): 1526-1532.e9. DOI:10.1016/j.apmr.2016.02.008.
[33] Chau JPC, Lo SHS, Butt L, et al.Post-stroke experiences and rehabilitation needs of community-dwelling Chinese stroke survivors: a qualitative study[J]. Int J Environ Res Public Health,2022,19(23):16345.DOI:10.3390/ijerph192316345.
[34] Chen T, Zhang B, Deng Y, et al.Long-term unmet needs after stroke: systematic review of evidence from survey studies[J]. BMJ Open, 2019, 9(5): e028137. DOI:10.1136/bmjopen-2018-028137.
基金
河南省高等学校重点科研项目计划(23B320002); 河南省研究生教育改革与质量提升工程项目(YJS2024KC24)