肝移植患儿家庭照顾者出院准备体验的质性研究

doi:10.16460/j.issn1008-9969.2023.09.013

摘要/Abstract

摘要： 目的深入了解肝移植患儿家庭照顾者的出院准备体验,以期为肝移植患儿家庭出院计划的制定提供参考,为我国肝移植患儿护理体系的完善提供依据。方法采用描述性现象学研究方法,以目的抽样法选取浙江省杭州市某三级甲等医院的14名肝移植患儿家庭照顾者进行半结构式深入访谈,运用Colaizzi 7步分析法对访谈资料进行分析。结果共提炼出4个主题,包括出院决策体验差异化、出院情绪体验复杂化、感知出院应对能力及应对资源不足、对出院后居家护理支持的需求。结论护理人员应积极评估肝移植患儿家庭照顾者的出院准备状态,协助其为患儿的出院做好心理、知识、技能及支持准备,促进肝移植患儿家庭照顾者从医院向家庭护理的安全过渡。

关键词: 肝移植, 出院准备, 儿科护理, 质性研究

Abstract: Objective To understand the experience of readiness for discharge of family caregivers of children with liver transplantation, to provide reference for the development of the discharge planning for children with liver transplantation and for the improvement of nursing system for children with liver transplantation in China. Methods We employed a phenomenological method in this study. Purposive sampling was used to recruit 14 family caregivers of children with liver transplantation from a tertiary grade-A hospital in Hangzhou, Zhejiang Province. Semi-structured interviews with the caregivers were conducted and Colaizzi 7-step analysis was used to sort out the data. Results Four themes were extracted, including the differences of discharge decision-making experience, the complexity of discharge emotional experience, the perception of poor discharge coping ability and insufficient coping resources, and the demand for home care support after discharge. Conclusion Nurses should proactively assess the readiness for discharge of family caregivers of children who have undergone liver transplantation and provide them with assistance in preparing for the transition from hospital to home care including psychological support, knowledge sharing, skill development, and emotional support, so as to ensure a safe transition for the family caregivers of these children.

Key words: liver transplantation, readiness for discharge, pediatric nursing, qualitative research

中图分类号:

R657.3

吕璐洋, 王华芬, 卢芳燕, 王燕, 蒋树英. 肝移植患儿家庭照顾者出院准备体验的质性研究[J]. 护理学报, 2023, 30(9): 13-17.

LV Lu-yang, WANG Hua-fen, LU Fang-yan, WANG Yan, JIANG Shu-ying. Experience of readiness for discharge of family caregivers of children with liver transplantation: a qualitative study[J]. Journal of Nursing, 2023, 30(9): 13-17.

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