护理学报 ›› 2023, Vol. 30 ›› Issue (16): 57-62.doi: 10.16460/j.issn1008-9969.2023.16.057
王奕1,2, 葛静玲1, 王娟3
WANG Yi1,2, GE Jing-ling1, WANG Juan3
摘要: 目的 分析问题提示列表在肿瘤医患沟通中应用的相关研究,综述问题提示列表的研制方法、应用对象和评价指标,并分析问题提示列表在国内肿瘤护理中的实践意义,为临床应用提供参考。方法 系统检索PubMed、Embase、Web of Science、Google Scholar、CINAHL、中国知网、中国生物医学文献数据库从建库至2023年5月的中英文文献,对文献进行筛选、分析、提取并总结。结果 共检索文献1 678篇,最终纳入21篇。问题提示列表应用于肿瘤医患沟通的研制方法尚无标准流程,包括初稿研制、评估可行性和评价应用效果3个步骤,应用对象集中在晚期肿瘤患者和姑息治疗患者,应用效果评价指标涵盖患者参与度、沟通效果、信息回忆能力以及患者心理情绪。结论 问题提示列表在肿瘤医患沟通中应用的研究大部分来自国外,国内相关研究尚处于起步阶段,建议医护人员借鉴国外成熟经验,研制适合我国国情的肿瘤患者问题提示列表,并在临床灵活运用,鼓励患者积极参与医疗咨询和决策,促进肿瘤医患沟通。
中图分类号:
[1] 胡静, 郭鸿轩, 宋东峰, 等. 综合医院住培医师医患沟通能力调查及相关因素分析[J]. 临床医学研究与实践, 2023,8(3):11-15. DOI:10.19347/j.cnki.2096-1413.202303003. [2] 刘宇, 冷峰, 施文大, 等. 基于服务差距模型的医疗纠纷现状[J]. 解放军医院管理杂志, 2021,28(7): 656-658. DOI:10.16770/J.cnki.1008-9985.2021.07.019. [3] 俞申妹, 冯佳, 张秋霞, 等. 六步爱心沟通法微视频教材在新入职护士沟通能力培训中的应用[J].中华护理杂志, 2019,54(11):1697-1701. DOI:10.3761/j.issn.0254-1769.2019.11.020. [4] Ruiyu X, Wei Z, Weiyi C, et al.The "hand as foot" teaching method in clinical education and doctor-patient communication for the tuberculum sellae[J]. Asian J Surg, 2023,46(6): 2352-2353. DOI:10.1016/j.asjsur.2022.12.010. [5] Datta SS, Tripathi L, Varghese R, et al.Pivotal role of families in doctor-patient communication in oncology: a qualitative study of patients, their relatives and cancer clinicians[J]. Eur J Cancer Care (Engl), 2017,26(5):1-8. DOI:10.1111/ecc.12543. [6] Lukasczik M, Gerlich C, Wolf HD, et al.Beyond oncology: question prompt lists in healthcare—a scoping review protocol[J]. Methods and Protocols,2020,3(1):9-16.DOI:10.3390/mps3010009. [7] 吴丽, 陈荣凤, 邹自玉, 等. 问题提示列表在乳腺癌患者中临床应用效果的系统评价[J]. 护理学报, 2022,29(2):45-50. DOI:10.16460/j.issn1008-9969.2022.02.045. [8] Butow PN, Dunn SM, Tattersall MH, et al.Patient participation in the cancer consultation:evaluation of a question prompt sheet[J]. Ann Oncol, 1994,5(3): 199-204. DOI:10.1093/oxfordjournals.annonc.a058793. [9] Smets EM, van Heijl M, van Wijngaarden AK, et al. Addressing patients' information needs: a first evaluation of a question prompt sheet in the pretreatment consultation for patients with esophageal cancer[J]. Dis Esophagus, 2012,25(6): 512-519. DOI:10.1111/j.1442-2050.2011.01274.x. [10] Arthur J, Yennurajalingam S, Williams J, et al.Development of a question prompt sheet for cancer patients receiving outpatient palliative care[J]. J Palliat Med, 2016,19(8): 883-887. DOI:10.1089/jpm.2015.0545. [11] Mclawhorn VC, Vess J, Dumas BP.Integrating a question prompt list on an inpatient oncology unit to increase prognostic awareness[J]. Clin J Oncol Nurs, 2016,20(4): 385-390. DOI:10.1188/16.CJON.385-390. [12] Tulder M, Furlan A, Bombardier C, et al.Updated method guidelines for systematic reviews in the cochrane collaboration back review group[J]. Spine (Phila Pa 1976), 2003,28(12):1290-1299. DOI:10.1097/01.BRS.0000065484.95996.AF. [13] Tsai PS, Wang CC, Lan YH, et al.Effectiveness of question prompt lists in patients with breast cancer: a randomized controlled trial[J]. Patient Educ Couns, 2022, 105(9): 2984-2994. DOI:10.1016/j.pec.2022.05.016. [14] Matsuoka A, Fujimori M, Narikazu B, et al.Geriatric assessment and management with question prompt list using a web-based application for elderly patients with cancer (MAPLE) to communicate ageing-related concerns: J-SUPPORT 2101 study protocol for a multicentre, parallel group, randomised controlled trial[J]. BMJ Open, 2022, 12(9): e63445-e63457. DOI:10.1136/bmjopen-2022-063445. [15] Bouleuc C, Savignoni A, Chevrier M, et al.A question prompt list for advanced cancer patients promoting advance care planning:a French randomized trial[J]. J Pain Symptom Manage, 2021,61(2):331-341. DOI:10.1016/jjpainsymman.2020.07.026. [16] Zetzl T, Mann D, Gruner S, et al.Question prompts to empower cancer patients: results of a randomized controlled trial[J]. Support Care Cancer, 2020,28(6):2571-2579. DOI: 10.1007/s00520-019-05036-0. [17] Rodenbach RA, Brandes K, Fiscella K, et al.Promoting end-of-Life discussions in advanced cancer: effects of patient coaching and question prompt lists[J]. J Clin Oncol, 2017,35(8): 842-851. DOI: 10.1200/JCO.2016.68.5651. [18] Tattersall MH, Jefford M, Martin A, et al.Parallel multicentre randomised trial of a clinical trial question prompt list in patients considering participation in phase 3 cancer treatment trials[J]. BMJ Open, 2017,7(3):e12666-e12673. DOI: 10.1136/bmjopen-2016-012666. [19] Eggly S, Hamel LM, Foster TS, et al.Randomized trial of a question prompt list to increase patient active participation during interactions with black patients and their oncologists[J]. Patient Educ Couns, 2017,100(5): 818-826. DOI: 10.1016/j.pec.2016.12.026. [20] Walczak A, Henselmans I, Tattersall MH, et al.A qualitative analysis of responses to a question prompt list and prognosis and end-of-life care discussion prompts delivered in a communication support program[J]. Psychooncology, 2015,24(3): 287-293. DOI: 10.1002/pon.3635. [21] Shirai Y, Fujimori M, Ogawa A, et al.Patients' perception of the usefulness of a question prompt sheet for advanced cancer patients when deciding the initial treatment: a randomized, controlled trial[J]. Psychooncology, 2012,21(7): 706-713. DOI: 10.1002/pon.1955. [22] Buizza C, Ghilardi A, Mazzardi P, et al.Effects of a question prompt sheet on the oncologist-patient relationship: a multi-centred randomised controlled trial in breast cancer[J]. J Cancer Educ, 2020,35(3):621-628. DOI:10.1007/s13187-019-01505-6. [23] Arthur J, Pawate V, Lu Z, et al.Helpfulness of question prompt sheet for patient-physician communication among patients with advanced aancer: a randomized clinical trial[J]. JAMA Netw Open, 2023,6(5):e2311189-e2311198. DOI:10.1001/jamanetworkopen.2023.11189. [24] Brédart A, Rault A, Terrasson J, et al.Helping patients communicate with oncologists when cancer treatment resistance occurs to develop, test, and implement a patient communication aid: sequential collaborative mixed methods Study[J]. JMIR Res Protoc, 2022,11(1): e26414-e26431. DOI: 10.2196/26414. [25] Ekberg S, Herbert A, Johns K, et al.Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care[J]. Palliat Med, 2020,34(3): 291-299. DOI: 10.1177/0269216319888988. [26] Berger Z, Tung M, Yesantharao P, et al.Feasibility and perception of a question prompt list in outpatient cancer care[J]. J Patient Rep Outcomes, 2019,3(1): 53-59. DOI: 10.1186/s41687-019-0145-y. [27] Yeh JC, Cheng MJ, Chung CH, et al.Using a question prompt list as a communication aid in advanced cancer care[J]. J Oncol Pract, 2014,10(3): e137-e141. DOI: 10.1200/JOP.2013.001295. [28] Brown RF, Bylund CL, Li Y, et al.Testing the utility of a cancer clinical trial specific Question Prompt List (QPL-CT) during oncology consultations[J]. Patient Educ Couns, 2012,88(2):311-317. DOI:10.1016/j.pec.2012.02.009. [29] Langbecker D, Janda M, Yates P.Development and piloting of a brain tumour-specific question prompt list[J]. Eur J Cancer Care (Engl), 2012,21(4):517-526. DOI:10.1111/j.1365-2354.2012.01328.x. [30] Jayasekera J, Vadaparampil ST, Eggly S, et al.Question prompt list to support patient-provider communication in the use of the 21-Gene recurrence test: feasibility, acceptability, and outcomes[J]. JCO Oncol Pract, 2020,16(10): e1085-e1097. DOI: 10.1200/JOP.19.00661. [31] Dimoska A, Butow PN, Lynch J, et al.Implementing patient question-prompt lists into routine cancer care[J]. Patient Educ Couns, 2012,86(2):252-258. DOI:10.1016/j.pec.2011.04.020. [32] Ting YY, Ey JD, Treloar EC, et al.Patient prompts in surgical consultations: a systematic review[J]. Surgery, 2022,172(6):1759-1767. DOI: 10.1016/j.surg.2022.08.031. [33] Keinki C, Momberg A, Clauβ K, et al.Effect of question prompt lists for cancer patients on communication and mental health outcomes-a systematic review[J]. Patient Educ Couns, 2021,104(6): 1335-1346. DOI: 10.1016/j.pec.2021.01.012. [34] Amundsen A, Ervik B, Butow P, et al.Adapting an Australian question prompt list in oncology to a Norwegian setting-a combined method approach[J]. Support Care Cancer, 2017,25(1):51-58. DOI:10.1007/s00520-016-3380-2. [35] Xia C, Dong X, Li H, et al.Cancer statistics in China and United States, 2022: profiles, trends, and determinants[J]. Chin Med J (Engl), 2022,135(5):584-590. DOI:10.1097/CM9.0000000000002108. [36] 王芳芳. 提升高职护理专业学生医患沟通能力的措施探究[J].中国培训, 2021,1(9):73-74. DOI:10.14149/j.cnki.ct.2021.09.036. [37] 岳梅. 新时代背景下中国医学生医患沟通能力提升路径研究[J]. 中国继续医学教育, 2020,12(35):95-98. DOI: 10.3969/j.issn.1674-9308.2020.35.026. [38] 王涛, 邹善思, 臧文巧. 对肿瘤内科医师进行医患沟通技巧专项培训的思索[J]. 中国继续医学教育, 2019,11(3): 36-38. DOI:10.3969/j.issn.1674-9308.2019.03.016. [39] Clayton J, Butow P, Tattersall M, et al.Asking questions can help: development and preliminary evaluation of a question prompt list for palliative care patients[J]. Br J Cancer, 2003,89(11): 2069-2077. DOI:10.1038/sj.bjc.6601380. [40] 李帅妮, 胡文奕, 高雅婷, 等. 癌症患者移动健康信息搜索行为及其影响因素[J]. 中华行为医学与脑科学杂志, 2021,30(5):426-433.DOI:10.3760/cma.j.cn371468-20201013-01788. [41] 王沛, 刘思雨, 陈宇杰, 等. 患者中心沟通方式对医疗满意度的影响:信息的视角[J]. 第二军医大学学报, 2021,42(7): 797-802. DOI:10.16781/j.0258-879x.2021.07.0797. [42] 李月琳, 张建伟, 张婳. 螺旋式与直线式:在线健康医疗平台用户与医生交互模式研究[J]. 情报学报, 2021,40(01): 88-100. DOI:10.3772/j.issn.1000-0135.2021.01.009. [43] Dee EC, Muralidhar V, Butler SS, et al.General and health-related internet use among cancer survivors in the United States: a 2013-2018 cross-sectional analysis[J]. J Natl Compr Canc Netw, 2020,18(11):1468-1475. DOI:10.6004/jnccn.2020.7591. [44] 龙双. 家庭支持式延续性护理对肺癌化疗患者自我效能及生存质量的影响[J]. 当代护士(上旬刊), 2021,28(5): 84-86. DOI:10.19791/j.cnki.1006-6411.2021.13.032. [45] Chittem M, Norman P, Harris PR.Relationships between perceived diagnostic disclosure, patient characteristics, psychological distress and illness perceptions in Indian cancer patients[J]. Psychooncology, 2013, 22(6):1375-1380. DOI:10.1002/pon.3149. [46] Harding R, Nair S, Ekstrand M.Multilevel model of stigma and barriers to cancer palliative care in India: a qualitative study[J]. BMJ Open, 2019,9(3): e24248-e24257. DOI:10.1136/bmjopen-2018-024248. [47] Clayton JM, Butow PN, Tattersall MH, et al.Randomized controlled trial of a prompt list to help advanced cancer patients and their caregivers to ask questions about prognosis and end-of-life care[J]. J Clin Oncol, 2007,25(6):715-723. DOI:10.1200/JCO.2006.06.7827. |
[1] | 田美雨, 王翠玲, 高若男, 田佳, 刘怡. 妇科肿瘤科护士性健康照护培训方案的构建[J]. 护理学报, 2025, 32(4): 18-23. |
[2] | 杜易梅, 刘莉, 郭立丽, 卢吉, 付苗苗, 刘杰. 妇科恶性肿瘤患者性健康研究进展[J]. 护理学报, 2025, 32(4): 28-33. |
[3] | 李垚, 陈小敏, 夏敏, 吴茜, 张琳, 陈叡喆, 葛莉丽, 吴逸梅. 肿瘤患者衰弱评估工具应用的范围综述[J]. 护理学报, 2025, 32(4): 48-52. |
[4] | 刘璐, 朱钰, 曹义, 张华, 彭玉娜. 腹腔热灌注化疗患者术中实施不同目标体温管理的效果观察[J]. 护理学报, 2025, 32(4): 59-63. |
[5] | 陈恩琳, 莫丰菱, 庄泽明, 张明哲, 周佳坤, 黄丽芳, 纪龙飞, 张莉芳. 脑卒中单侧空间忽略评估工具的范围综述[J]. 护理学报, 2025, 32(3): 43-49. |
[6] | 朱天顺, 朱可可, 薛会元, 焦聪聪, 魏长慧, 王贺. 信息框架效应理论在健康管理领域应用的范围综述[J]. 护理学报, 2025, 32(2): 44-49. |
[7] | 闫亚铃, 乐美妮, 姚桃琴, 王雪莲, 姜建玲, 辛艺. 老年胃肠肿瘤患者围手术期衰弱管理方案的构建[J]. 护理学报, 2025, 32(2): 74-78. |
[8] | 李珂, 贺雨琼, 李雨蔚, 常颖. 脑卒中患者跌倒恐惧干预研究的范围综述[J]. 护理学报, 2025, 32(1): 50-55. |
[9] | 李丁丁, 王帅有, 朱杉杉, 郭鑫, 张会敏, 王宏茹, 潘勤. 脑卒中患者支持性照护需求评估工具的范围综述[J]. 护理学报, 2024, 31(9): 48-53. |
[10] | 莫然, 常晓未, 马芳芳, 顾晴. 18例肿瘤患者并发危重度免疫检查点抑制剂相关心肌炎的护理[J]. 护理学报, 2024, 31(8): 60-62. |
[11] | 郭俊晨, 刘超毅, 戴云云, 蒋思珊, 杨索, 谌永毅. 虚拟现实技术在生命末期患者中应用的范围综述[J]. 护理学报, 2024, 31(7): 40-45. |
[12] | 梅紫琦, 金胜姬, 李玮彤, 柏亚妹, 宋玉磊, 李伊婷, 王萌, 徐桂华. 智能机器人在护理健康教育领域中应用的范围综述[J]. 护理学报, 2024, 31(7): 57-62. |
[13] | 郑晓婷, 田霞, 王峥, 肖文莉. King达标理论在慢性病家庭护理中应用的范围综述[J]. 护理学报, 2024, 31(5): 56-60. |
[14] | 李佳萍, 朱云霞, 朱宇. 乳腺癌化疗患者症状群的范围综述[J]. 护理学报, 2024, 31(4): 60-64. |
[15] | 魏永婷, 席祖洋, 田书梅, 谢丹, 郑一宁. 基于个人绩效四维模型的肿瘤专科医院手术室护士绩效考核指标的焦点小组访谈研究[J]. 护理学报, 2024, 31(3): 30-35. |
|