护理学报 ›› 2023, Vol. 30 ›› Issue (7): 33-37.doi: 10.16460/j.issn1008-9969.2023.07.033
毛赛璐1, 曾莉2
摘要: 目的 综述ICU患者代理决策者决策冲突的研究进展,以期为科学化管理ICU患者代理决策者的决策冲突提供思路和参考。方法 检索国内外相关数据库,对决策冲突的概念、评估工具、代理决策者决策冲突的表现形式及影响因素进行综述。结果 ICU患者代理决策者决策冲突发生率高,表现形式各异,影响因素众多,负面影响较广,但目前临床缺乏有效识别和干预。代理决策者决策冲突的表现形式包括:决策偏好的冲突、决策模式的冲突、决策内容的冲突、决策过程信息缺乏、决策主体情绪困境。代理决策者决策冲突的影响因素包括患者相关因素、代理决策者相关因素、家庭相关因素、医疗相关因素、文化相关因素。结论 科学化管理代理决策者决策冲突对于提高决策质量,改善患者最终结局具有重要意义,但目前医护人员对决策冲突的认知不足且缺乏成熟的评价体系及有效的决策辅助手段,未来有待深入研究以改善现状。
中图分类号:
[1] Fried TR.Communication about treatment options and shared decision making in the intensive care unit[J]. JAMA Intern Med,2019,179(5):684-685.DOI:10.1001/jamainternmed.2019.0034. [2] Cai X, Robinson J, Muehlschlegel S, et al.Patient preferences and surrogate decision making in neuroscience intensive care units[J]. Neurocrit Care, 2015,23(1):131-141.DOI:10.1007/s12028-015-0149-2. [3] Wu F, Zhuang Y, Chen X, et al.Decision-making among the substitute decision makers in intensive care units: an investigation of decision control preferences and decisional conflicts[J]. J Adv Nurs, 2020,76(9):2323-2335.DOI:10.1111/jan.14451. [4] Bibas L, Peretz-Larochelle M, Adhikari NK, et al.Association of surrogate decision-making interventions for critically ill adults with patient, family, and resource use outcomes: a systematic review and Meta-analysis[J]. JAMA Netw Open, 2019,2(7):e197229.DOI:10.1001/jamanetworkopen.2019.7229. [5] October TW, Jones AH, Greenlick MH, et al.Parental conflict, regret, and short-term impact on quality of life in tracheostomy decision-making[J]. Pediatr Crit Care Med, 2020,21(2):136-142.DOI:10.1097/PCC.0000000000002109. [6] Janis IL, Mann L.Emergency decision making: a theoretical analysis of responses to disaster warnings[J]. J Human Stress,1977,3(2):35-45.DOI:10.1080/0097840X.1977.9936085. [7] Garvelink MM, Boland L, Klein K, et al.Decisional Conflict Scale Use over 20 Years: The Anniversary Review[J]. Med Decis Making,2019,39(4):301-314.DOI:10.1177/0272989X19851345. [8] Sim JA, Shin JS, Park SM, et al.Association between information provision and decisional conflict in cancer patients[J]. Annals of Oncology, 2015,26(9):1974.DOI:10.1093/annonc/mdv275. [9] O'Connor AM. Validation of a Decisional Conflict Scale[J]. Med Decis Making, 1995,15(1):25-30.DOI:10.1177/0272989X9501500105. [10] Pecanac KE, Brown RL, Steingrub J, et al.A psychometric study of the Decisional Conflict Scale in surrogate decision makers[J]. Patient Educ Couns, 2018,101(11):1957-1965.DOI:10.1016/j.pec.2018.07.006. [11] Lam WW, Kwok M, Liao Q, et al.Psychometric assessment of the Chinese version of the Decisional Conflict Scale in Chinese women making decision for breast cancer surgery[J]. Health Expect, 2015,18(2):210-220.DOI:10.1111/hex.12021. [12] 李玉. 早期原发性肝癌患者治疗决策辅助方案的构建与应用研究[D]. 上海:第二军医大学, 2017. [13] Legare F,Kearing S,Clay K,et al.Are you SURE?: Assessing patient decisional conflict with a 4-item screening test[J]. Can Fam Physician, 2010,56(8):e308-e314. [14] 孙遥. 预先医疗指示制度研究[D]. 济南:山东大学, 2017. [15] Sharma RK,Hughes MT,Nolan MT,et al.Family understanding of seriously-ill patient preferences for family involvement in healthcare decision making[J]. J Gen Intern Med, 2011,26(8):881-886.DOI:10.1007/s11606-011-1717-6. [16] 高茜, 胡建萍, 何东梅, 等. 终末期患者与家属治疗决策一致性研究[J]. 护理学杂志, 2019,34(10):80-83. [17] 蒙艺, 陈玲, 邹丽琴. 医疗决策模式中权力权利与文化的变迁及启示[J]. 护理学报, 2021,28(16):74-78.DOI:10.16460/j.issn1008-9969.2021.16.074. [18] 吴菲霞, 庄一渝, 陈香萍, 等. ICU患者家属参与决策的现况研究[J]. 临床荟萃, 2020,35(1):67-71. [19] 余晓, 田刻平, 张小红, 等. 危重患者临终决策的研究现状[J]. 中国护理管理, 2017,17(2):271-275. [20] 陈佳丽, 曾莉. 基于护士视角的重型颅脑损伤患者临床决策困境影响因素研究[J]. 护理学杂志, 2021,36(3):95-98. [21] Xiao L, Peng M, Liu Y, et al.Information, deliberation, and decisional control preferences for participation in medical decision-making and its influencing factors among Chinese cancer patients[J]. Health Expect, 2021,24(5):1725-1736.DOI:10.1111/hex.13312. [22] Su Y,Yuki M,Hirayama K.The experiences and perspectives of family surrogate decision-makers: a systematic review of qualitative studies[J]. Patient Educ Couns, 2020,103(6):1070-1081.DOI:10.1016/j.pec.2019.12.011. [23] 陈佳丽, 曾莉. 代理决策在重症监护室患者护理中的应用进展[J]. 解放军护理杂志, 2022,39(4):77-80. [24] 张耀丹, 刘欢, 杜爱平,等. ICU患者家属临床治疗决策影响因素的质性研究[J]. 现代医学, 2020,48(11):1428-1432. [25] 孙也龙. 医疗决定代理的法律规制[J]. 法商研究, 2018,35(6):3-15. DOI:10.16390/j.cnki.issn1672-0393.2018.06.002. [26] Hickman RJ, Pignatiello GA, Tahir S.Evaluation of the decisional fatigue scale among surrogate decision makers of the critically ill[J]. West J Nurs Res, 2018,40(2):191-208.DOI:10.1177/0193945917723828. [27] Azoulay E, Chaize M, Kentish-Barnes N.Involvement of ICU families in decisions: fine-tuning the partnership[J]. Ann Intensive Care, 2014,4:37.DOI:10.1186/s13613-014-0037-5. [28] Davison BJ, So AI, Goldenberg SL.Quality of life, sexual function and decisional regret at 1 year after surgical treatment for localized prostate cancer[J]. BJU Int, 2007,100(4):780-785.DOI:10.1111/j.1464-410X.2007.07043.x. [29] Cohen AB, DeMartino ES. How should advance care planning be done when a surrogate is making decisions?[J]. J Am Geriatr Soc,2021,69(8):2103-2105.DOI:10.1111/jgs.17222. [30] Miller JJ, Morris P, Files DC, et al.Decision conflict and regret among surrogate decision makers in the medical intensive care unit[J]. J Crit Care, 2016,32:79-84.DOI:10.1016/j.jcrc.2015.11.023. [31] Tricou C, Yennu S, Ruer M, et al.Decisional control preferences of patients with advanced cancer receiving palliative care[J]. Palliat Support Care, 2018,16(5):544-551.DOI:10.1017/S1478951517000803. [32] Kother AK, Alpers GW, Budenbender B, et al.Predicting decisional conflict: anxiety and depression in shared decision making[J]. Patient Educ Couns, 2021,104(5):1229-1236.DOI:10.1016/j.pec.2020.10.037. [33] Pecanac KE, Brown RL, Kremsreiter HB.Decisional conflict during major medical treatment decision-making: a survey study[J]. J Gen Intern Med, 2021,36(1):55-61.DOI:10.1007/s11606-020-06125-1. [34] Luce JM.End-of-life decision making in the intensive care unit[J]. Am J Respir Crit Care Med, 2010,182(1):6-11.DOI:10.1164/rccm.201001-0071CI. [35] De Oliveira GJ, Errea M, Bialek J, et al.The impact of health literacy on shared decision making before elective surgery: a propensity matched case control analysis[J]. BMC Health Serv Res,2018,18(1):958.DOI:10.1186/s12913-018-3755-9. [36] Wubben N, van den Boogaard M, van der Hoeven JG, et al. Shared decision-making in the ICU from the perspective of physicians, nurses and patients: a qualitative interview study[J]. BMJ Open,2021,11(8):e50134.DOI:10.1136/bmjopen-2021-050134. [37] Joseph-Williams N, Elwyn G, Edwards A.Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making[J]. Patient Educ Couns, 2014,94(3):291-309.DOI:10.1016/j.pec.2013.10.031. [38] 苑娜, 刘春娥, 于蕾, 等. 患者参与治疗决策的现状及影响因素研究进展[J]. 医学与社会, 2017,30(3):58-61.DOI:10.13723/j.yxysh.2017.03.018. [39] 马小川, 王建光. ICU治疗领域的伦理问题辨析[J]. 医学与哲学(A), 2017,38(5):17-20. [40] Hamano J, Morita T, Mori M, et al.Prevalence and predictors of conflict in the families of patients with advanced cancer: A nationwide survey of bereaved family members[J]. Psychooncology,2018,27(1):302-308.DOI:10.1002/pon.4508. [41] Jeon BM, Kim SH, Lee SJ.Decisional conflict in end-of-life cancer treatment among family surrogates: a cross-sectional survey[J]. Nurs Health Sci, 2018,20(4):472-478.DOI:10.1111/nhs.12537. [42] Bagshaw HP, Martinez A, Heidari N, et al.A personalized decision aid for prostate cancer shared decision making[J]. BMC Med Inform Decis Mak, 2021,21(1):374.DOI:10.1186/s12911-021-01732-2. [43] Subramanian L, Zhao J, Zee J, et al.Use of a decision aid for patients considering peritoneal dialysis and in-center hemodialysis: a randomized controlled trial[J]. Am J Kidney Dis, 2019,74(3):351-360.DOI:10.1053/j.ajkd.2019.01.030. |
[1] | 杜易梅, 刘莉, 郭立丽, 卢吉, 付苗苗, 刘杰. 妇科恶性肿瘤患者性健康研究进展[J]. 护理学报, 2025, 32(4): 28-33. |
[2] | 李垚, 陈小敏, 夏敏, 吴茜, 张琳, 陈叡喆, 葛莉丽, 吴逸梅. 肿瘤患者衰弱评估工具应用的范围综述[J]. 护理学报, 2025, 32(4): 48-52. |
[3] | 王小叶, 安俊红, 刘倩, 任琴, 高瑞琴, 范丽红. 共享决策在糖尿病足患者中应用的研究进展[J]. 护理学报, 2025, 32(3): 32-37. |
[4] | 焦雪萍, 王志稳, 韩舒羽. ICU老年患者躁动行为的干预研究进展[J]. 护理学报, 2025, 32(3): 38-42. |
[5] | 陈恩琳, 莫丰菱, 庄泽明, 张明哲, 周佳坤, 黄丽芳, 纪龙飞, 张莉芳. 脑卒中单侧空间忽略评估工具的范围综述[J]. 护理学报, 2025, 32(3): 43-49. |
[6] | 朱天顺, 朱可可, 薛会元, 焦聪聪, 魏长慧, 王贺. 信息框架效应理论在健康管理领域应用的范围综述[J]. 护理学报, 2025, 32(2): 44-49. |
[7] | 刘畅, 张维, 王翠雪, 岳鹏. ICU实施非限制性探视制度的影响因素研究进展[J]. 护理学报, 2025, 32(1): 34-38. |
[8] | 李珂, 贺雨琼, 李雨蔚, 常颖. 脑卒中患者跌倒恐惧干预研究的范围综述[J]. 护理学报, 2025, 32(1): 50-55. |
[9] | 方雅婷, 王岩, 王哲芸, 余云, 徐婷婷. 经口气管插管患者口腔功能减退的研究进展[J]. 护理学报, 2024, 31(9): 28-31. |
[10] | 李丁丁, 王帅有, 朱杉杉, 郭鑫, 张会敏, 王宏茹, 潘勤. 脑卒中患者支持性照护需求评估工具的范围综述[J]. 护理学报, 2024, 31(9): 48-53. |
[11] | 华晶, 张青月, 王燕, 程畅, 张秀丽, 张爱爱. 问题提示清单在乳腺癌手术患者中的应用研究[J]. 护理学报, 2024, 31(8): 18-22. |
[12] | 张小莉, 杨鑫玉, 肖宇, 刘春燕, 张璐, 伍晓琴, 黄月霖, 傅静. 晚期癌症患者代理决策者安宁疗护决策后悔研究的范围综述[J]. 护理学报, 2024, 31(8): 49-54. |
[13] | 郭俊晨, 刘超毅, 戴云云, 蒋思珊, 杨索, 谌永毅. 虚拟现实技术在生命末期患者中应用的范围综述[J]. 护理学报, 2024, 31(7): 40-45. |
[14] | 梅紫琦, 金胜姬, 李玮彤, 柏亚妹, 宋玉磊, 李伊婷, 王萌, 徐桂华. 智能机器人在护理健康教育领域中应用的范围综述[J]. 护理学报, 2024, 31(7): 57-62. |
[15] | 郑晓婷, 田霞, 王峥, 肖文莉. King达标理论在慢性病家庭护理中应用的范围综述[J]. 护理学报, 2024, 31(5): 56-60. |
|