子女照护临终患者体验的Meta整合

doi:10.16460/j.issn1008-9969.2021.18.028

摘要/Abstract

摘要： 目的系统总结临终患者子女照顾者真实体验的质性研究,为更好地了解他们的需求、困境、体验与收获,构建基于子女体验的支持方案提供可靠依据。方法计算机检索中英文数据库：PubMed、The Cochrane Library、Web of Science、EMbase、万方数据库、维普、中国知网与中国生物医学文献数据库,搜集有关临终患者子女照顾者体验的质性研究,检索时限为建库至2021年2月。采用2017年澳大利亚JBI循证卫生保健中心质性研究文献质量评价工具评价文献质量,使用Nvivo 11软件通过汇集性整合的方法进行结果整合。结果共纳入14项研究,提炼出55个研究结果,将相似的研究结果归纳形成7个新类别,得出3个整合结果。整合结果1：子女照顾者对死亡的态度;整合结果2：子女照顾临终患者时的动机、行为、感受和改变;整合结果3：子女照顾临终患者时产生的困境和需求。结论子女在照顾临终患者时有复杂的体验。医务人员应及时关注这些体验以及他们的特殊困境,为子女照顾者提供死亡教育和人文护理,促进子女照顾者间的经验交流,并提升他们的照顾能力。

关键词: 临终, 子女, 体验, 质性研究, Meta整合

Abstract: Objective To systematically summarize the qualitative research on real experience of adult children as caregivers of dying patients, to better understand their needs, difficulties, experience and gains, and to provide reliable basis for the construction of support scheme based on adult children's experience. Methods Four Chinese relevant databases(Wanfang database, VIP, CNKI and CBM) and four English databases (PubMed, The Cochrane Library, Web of Science and EMbase) were searched for qualitative research on the experience of adult children caregivers of dying patient from the inception to February 2021. The quality of studies was evaluated according to JBI Critical Appraisal Tool for qualitative studies in Australia, and Nvivo 11 software was used to integrate the results through a collective integration method. Results A total of 55 findings were extracted from 14 qualified studies. The 55 findings were consequently integrated into 7 categories and finally 3 synthesized results were summarized as follows: children caregiver's attitude towards death; children's motivation, behavior, experience and changes when caring for dying patients; children's dilemma and needs when caring for dying patients. Conclusion Adult children have complicated experience in caring for the dying patients. Medical staff should pay attention to the experience and their special difficulties in time, provide death education and humanistic care for adult children caregivers, so as to promote experience sharing and care ability.

Key words: end of life, adult children, experience, qualitative research, Meta-synthesis

中图分类号:

R473

张晓天, 邱雨, 岳鹏, 蔺建宇. 子女照护临终患者体验的Meta整合[J]. 护理学报, 2021, 28(18): 28-34.

ZHANG Xiao-tian, QIU Yu, YUE Peng, LIN Jian-yu. Experience of Adult Children in Caring for Dying Patients：A Meta-synthesis of Qualitative Studies[J]. Journal of Nursing, 2021, 28(18): 28-34.

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