以质量求发展,以服务铸品牌

护理学报 ›› 2023, Vol. 30 ›› Issue (10): 31-34.doi: 10.16460/j.issn1008-9969.2023.10.031

• 文献研究 • 上一篇    下一篇

青少年癌症患者家庭照护者健康素养的研究进展

唐涵a,b, 尚磊a   

  1. 空军军医大学 a.军事预防医学系卫生统计学教研室; b.护理系,陕西 西安 710032
  • 收稿日期:2022-11-25 出版日期:2023-05-25 发布日期:2023-06-08
  • 通讯作者: 尚磊(1968-),男,陕西西安人,博士,教授,博士研究生导师,教研室主任。E-mail:shanglei@fmmu.edu.cn
  • 作者简介:唐涵(1995-),女,河南濮阳人,硕士,博士研究生在读,护师。
  • 基金资助:
    国家自然科学基金面上项目(82173627)

  • Received:2022-11-25 Online:2023-05-25 Published:2023-06-08

摘要: 目的 对青少年癌症患者家庭照护者健康素养的概念内涵、现状、影响因素和干预进行综述,为制定针对性的干预措施提供依据。方法 检索国内外相关文献,从概念内涵、现状、影响因素和相关干预研究进行总结归纳和分析。结果 目前尚缺乏特异性的青少年癌症患者家庭照护者健康素养的概念内涵,相关概念模型仍需进一步开发或验证。影响因素包括照护者一般人口学因素、社会经济地位、心理调节等。现存的干预措施包括儿科肿瘤居家照护教育、决策辅助和决策支持方案、幸存者健康中心等。结论 未来应重视青少年癌症患者家庭照护者的健康素养,组建以护士为核心的多学科研究团队。根据我国文化和人群特点,明晰相关概念内涵和模型,并结合健康素养的现状和影响因素,为干预方案的构建提供理论基础。此外,引进国外成熟的健康素养干预方案或健康管理制度,进行文化调试,以临床或社区为单位进行试验和完善,进一步保障干预研究的科学性、全面性和针对性。

关键词: 青少年, 癌症, 家庭照护者, 健康素养

中图分类号: 

  • R473.1
[1] Kocarnik JM, Fu W, Ketterl TG, et al.The global burden of adolescent and young adult cancer in 2019: a systematic analysis for the global burden of disease study 2019[J]. Lancet Oncol, 2022,23(1):27-52. DOI:10.1016/S1470-2045(21)00581-7.
[2] Erdmann F, Frederiksen LE, Bonaventure A, et al.Childhood cancer: survival, treatment modalities, late effects and improvements over time[J]. Cancer Epidemiol, 2021,71(Pt B):101733. DOI:10.1016/j.canep.2020.101733.
[3] Huang YJ, Lee SL, Wu LM.Health-promoting lifestyle and its predictors in adolescent survivors of childhood cancer[J]. J Pediatr Oncol Nurs, 2021,38(4):233-241. DOI:10.1177/1043454221992322.
[4] 王鹏程, 孟爱凤, 智晓旭, 等. 青少年癌症患者生活体验质性研究的Meta整合[J]. 护理学报, 2020,27(10):43-48. DOI:10.16460/j.issn1008-9969.2020.10.043.
[5] 曾庆威, 罗梦娜, 王菲菲, 等. 青少年癌症幸存者重返校园体验与期待的质性研究[J].解放军护理杂志, 2021,38(12):46-48. DOI:10.3969/j.issn.1008-9993.2021.12.012.
[6] 陈思晴, 曹梅娟, 张邢炜, 等. 慢性病患者健康素养测评工具的分析与评价[J]. 中国护理管理, 2022,22(5):787-791. DOI:10.3969/j.issn.1672-1756.2022.05.030.
[7] Moore C, Hassett D, Dunne S.Health literacy in cancer caregivers: a systematic review[J]. J Cancer Surviv, 2021,15(6):825-836. DOI:10.1007/s11764-020-00975-8.
[8] Lim BT, Huang YJ, Shepherd HL, et al.Health literacy and cancer care coordination in Chinese migrant patients and their carers: a cross-sectional survey[J]. Psychooncology, 2019,28(5):1048-1055. DOI:10.1002/pon.5050.
[9] Melton KK, Caldwell EP.Home environment influence on adolescent health literacy[J]. Fam Community Health, 2022,45(1):1-9. DOI:10.1097/FCH.0000000000000314.
[10] Pahl DA, Wieder MS, Steinberg DM.Social isolation and connection in adolescents with cancer and survivors of childhood cancer: a systematic review[J]. J Adolesc, 2021,87:15-27. DOI:10.1016/j.adolescence.2020.12.010.
[11] 俞晴, 徐东娥.慢性病照顾者健康素养研究进展[J].护理研究,2021,35(15):2693-2697. DOI:10.12102/j.issn.1009-6493.2021.15.012.
[12] 李本燕, 白露露, 吴楷雯, 等. 我国居民健康素养提升的难点与对策探析[J].健康教育与健康促进,2021,16(1):53-57. DOI:10.16117/j.cnki.31-1974/r.202101053.
[13] Nutbeam D, Lloyd JE.Understanding and responding to health literacy as a social determinant of health[J]. Annu Rev Public Health, 2021,42:159-173.DOI:10.1146/annurev-publhealth-090419-102529.
[14] Rababah JA, Al-Hammouri MM, Drew BL, et al.Health literacy: exploring disparities among college students[J]. BMC Public Health,2019,19(1):1401.DOI:10.1186/s12889-019-7781-2.
[15] Papadakos JK, Hasan SM, Barnsley J, et al.Health literacy and cancer self-management behaviors: a scoping review[J]. Cancer, 2018,124(21):4202-4210.DOI:10.1002/cncr.31733.
[16] Ousseine YM, Bouhnik AD, Mancini J.Health literacy and clinical trial participation in French cancer patients: a national survey[J]. Curr Oncol, 2022,29(5):3118-3129. DOI: 10.3390/curroncol29050253.
[17] Hyatt A, Drosdowsky A, Koproski T, et al.Identification of low health and cancer literacy in oncology patients: a cross-sectional survey[J]. Support Care Cancer, 2021,29(11):6605-6612. DOI:10.1007/s00520-021-06164-2.
[18] Altin SV, Finke I, Kautz-Freimuth S, et al.The evolution of health literacy assessment tools: a systematic review[J]. BMC Public Health, 2014,14:1207.DOI:10.1186/1471-2458-14-1207.
[19] Kim H, Goldsmith JV, Sengupta S, et al.Mobile health application and e-Health literacy: opportunities and concerns for cancer patients and caregivers[J].J Cancer Educ, 2019,34(1):3-8. DOI:10.1007/s13187-017-1293-5.
[20] Wittenberg E, Goldsmith JV, Rios M.Improving cancer caregiver communication and health literacy with a brief online training module[J]. Psychooncology,2022,31(9):1616-1618. DOI:10.1002/pon.6003.
[21] Yuen EY, Dodson S, Batterham RW, et al.Development of a conceptual model of cancer caregiver health literacy[J]. Eur J Cancer Care (Engl),2016,25(2):294-306.DOI:10.1111/ecc.12284.
[22] 邱丽欢, 郑彤, 黄敏清, 等. 癌症患者照顾者健康素养的研究进展[J]. 护理学杂志, 2023,38(2):117-120. DOI:10.3870/j.issn.1001-4152.2023.02.117.
[23] 崔伟伟, 付笑颖, 鲁方方. 河南省慢性病儿童主要照顾者电子健康素养的现况调查分析[J]. 航空航天医学杂志, 2022,33(10):1230-1234.DOI:10.3969/j.issn.2095-1434.2022.10.028.
[24] Nobre J, Oliveira AP, Monteiro F, et al.Promotion of mental health literacy in adolescents: a scoping review[J]. Int J Environ Res Public Health,2021,18(18):9500.DOI:10.3390/ijerph18189500.
[25] 霍记平, 杨兴华, 王兴河, 等. 中国家庭中儿童主要照护者的用药健康素养:一项全国性调查研究[J]. 医药导报, 2021,40(9):1287-1295.DOI:10.3870/j.issn.1004-0781.2021.09.024.
[26] Carroll N, Perreault M, Ma DW, et al.Assessing food and nutrition literacy in children and adolescents: a systematic review of existing tools[J]. Public Health Nutr, 2021,25(4):1-16. DOI:10.1017/S1368980021004389.
[27] Nutbeam D.Health literacy as a public health goal: a challenge for contemporary health education and communication strategies into the 21st century[J]. Health Promot Int, 2000(3):259-267.
[28] Errington J, Malik G, Evans J, et al.Investigating the experiences of childhood cancer patients and parents participating in optional nontherapeutic clinical research studies in the UK[J]. Pediatr Blood Cancer, 2016,63(7):1193-1197. DOI:10.1002/pbc.25960.
[29] Sajeev M, Cohen J, Wakefield CE, et al.Decision aid for nutrition support in pediatric oncology: a pilot study[J]. J Parenter Enteral Nutr, 2017,41(8):1336-1347.DOI:10.1177/0148607116661840.
[30] Hentea C, Downs SM, Tucker EB,et al.Impact of socioeconomic markers on parents' retention of pediatric oncology home care education: a pilot study[J]. Pediatr Blood Cancer, 2019,66(5): e27624. DOI:10.1002/pbc.27624.
[31] Shea KA, Steinberg DM, Santiago RA.Bridging the gap: a pilot program to understand and meet the needs of pediatric patients and families as they transition off cancer-directed therapy[J]. J Pediatr Oncol Nurs, 2019,36(2):86-92. DOI:10.1177/1043454218819452.
[32] 张伊缘, 赵小平. 白血病患儿家属电子健康素养现状及影响因素分析[J]. 当代护士(上旬刊), 2021,28(10):51-53. DOI:10.19791/j.cnki.1006-6411.2021.28.017.
[33] Panton RL, Downie R, Truong T, et al.A visual approach to providing prognostic information to parents of children with retinoblastoma[J]. Psychooncology, 2009,18(3):300-304. DOI:10.1002/pon.1397.
[34] Hentea C, Cheng ER, Bauer NS, et al.Parent-centered communication at time of pediatric cancer diagnosis: a systematic review[J].Pediatr Blood Cancer,2018,65(8): e27070.DOI:10.1002/pbc.27070.
[35] Glick AF, Yin HS, Dreyer BP.Health literacy and pediatric health[J]. Stud Health Technol Inform, 2020,269:72-94. DOI:10.3233/SHTI200024.
[36] 陈娟娟, 李惠萍, 杨娅娟, 等.癌症患者家庭韧性及照顾者反应对患者心理韧性的影响[J].中国卫生统计,2022,39(6):943-946. DOI:10.3969/j.issn.1002-3674.2022.06.036.
[37] Gurtovenko K, Fladeboe KM, Galtieri LR, et al.Stress and psychological adjustment in caregivers of children with cancer[J]. Health Psychol, 2021,40(5):295-304. DOI:10.1037/hea0001070.
[38] Al GN, Stevens E, Velázquez-Martin B, et al.Family factors and health-related quality of life within 6 months of completion of childhood cancer treatment[J]. Psychooncology, 2021,30(3):408-416. DOI:10.1002/pon.5592.
[39] 高红, 邾萍, 胡婷婷. 青少年癌症患者主要照顾者生活质量研究进展[J]. 护理实践与研究, 2022,19(16):2457-2462. DOI:10.3969/j.issn.1672-9676.2022.16.017.
[40] Tan R, Koh S, Wong ME, et al.Caregiver stress, coping strategies, and support needs of mothers caring for their children who are undergoing active cancer treatments[J]. Clin Nurs Res,2020,29(7):460-468.DOI:10.1177/1054773819888099.
[41] 胡玉兰, 陈英, 田露, 等. 青少年慢性病患者过渡期护理研究进展[J]. 护理学杂志, 2023,38(2):112-116. DOI:10.3870/j.issn.1001-4152.2023.02.112.
[1] 刘琪, 刘佳丽, 刘玉, 杨丽敏, 范育英, 吕星, 覃惠英. 鼻咽癌患者诱导化疗序贯同期放化疗期间躯体-心理症状负担轨迹及影响因素研究[J]. 护理学报, 2025, 32(1): 1-6.
[2] 张小莉, 杨鑫玉, 肖宇, 刘春燕, 张璐, 伍晓琴, 黄月霖, 傅静. 晚期癌症患者代理决策者安宁疗护决策后悔研究的范围综述[J]. 护理学报, 2024, 31(8): 49-54.
[3] 黄佳颖, 张静, 梁丽婵, 孟江南, 叶红雨, 王为杰, 史蕾. 简版儿科症状筛查工具的汉化及在4~7岁癌症患儿中的信效度检验[J]. 护理学报, 2024, 31(8): 55-59.
[4] 陈芮, 王梅, 唐晓霞, 朱傲雪, 毛惠娜. 基于ERG理论的免疫检查点抑制剂治疗癌症患者护理需求方案的构建[J]. 护理学报, 2024, 31(7): 1-5.
[5] 朱心悦, 嵇冰聪, 蓝雪芬, 季晓珍. 糖尿病患者电子健康素养研究进展[J]. 护理学报, 2024, 31(7): 36-39.
[6] 袁华君, 段功香, 陈路桥, 王慧清. 癌症终末期患者救护意愿量表的编制及信效度检验[J]. 护理学报, 2024, 31(6): 73-78.
[7] 宋彩妮, 郑尧, 宋英, 刘丽华. 癌症照顾者信息隐瞒量表的汉化及在肺癌患者照顾者中的信效度检验[J]. 护理学报, 2024, 31(3): 17-20.
[8] 栗跃歌, 孔涵, 曹鼎, 李佳欣, 尚娅萌, 常淑莹. 228例中青年宫颈癌术后患者癌症复发恐惧现状及影响因素分析[J]. 护理学报, 2024, 31(20): 8-12.
[9] 潘靖达, 董燕燕, 何家欣, 刘红利, 林穗仪, 于红静, 潘珊, 李佳佳, 凌冬兰. 医护人员对癌症患者病情披露心理体验的Meta整合[J]. 护理学报, 2024, 31(16): 56-61.
[10] 郭颖英, 俞新燕, 谢淑萍. 虚拟现实在癌症晚期患者安宁疗护中的应用[J]. 护理学报, 2024, 31(11): 58-62.
[11] 胡玉兰, 陈英, 余艮珍, 王梦月. 儿科护士的慢性病患儿过渡期护理态度问卷编制及信效度检验[J]. 护理学报, 2024, 31(10): 64-69.
[12] 钱湛, 杨晓婷, 林觐民. 癌症患者生育忧虑体验的Meta整合[J]. 护理学报, 2023, 30(4): 55-60.
[13] 孙琪, 李丹钰, 宗旭倩, 袁长蓉, 罗菁, 黄青梅, 张雯, 杨瑒, 吴傅蕾. 移动医疗在癌症老年患者院外管理中的应用进展[J]. 护理学报, 2023, 30(22): 36-39.
[14] 韩燕, 徐彬, 蒋慧珠, 吴丽丽, 仓艳红. 校园欺凌致情绪障碍的青少年患者应对措施的质性研究[J]. 护理学报, 2023, 30(22): 74-78.
[15] 董岩, 朱思颖, 王虹, 范甜甜, 黎玉梅, 韩媛. 青少年癌症幸存者重返校园体验质性研究的Meta整合[J]. 护理学报, 2023, 30(19): 56-61.
Viewed
Full text


Abstract

Cited

  Shared   
No Suggested Reading articles found!