以质量求发展，以服务铸品牌

护理学报 ›› 2023, Vol. 30 ›› Issue (15): 6-10.doi: 10.16460/j.issn1008-9969.2023.15.006

• 研究生园地 • 上一篇    下一篇

基于文化敏感性框架肿瘤患儿安宁疗护方案的构建

孙丽, 黄家丽, 胡成文, 顾道琴, 韦琦, 方敏, 刘群慧, 许宝惠   

  1. 安徽省肿瘤医院,安徽 合肥 230001
  • 收稿日期:2022-11-18 出版日期:2023-08-10 发布日期:2023-09-08
  • 通讯作者: 胡成文（1965-）,女,安徽六安人,硕士,主任护师,硕士研究生导师。E-mail：huchengwen318@126.com
  • 作者简介:孙丽（1988-）,女,四川犍为人,硕士,主管护师。
  • 基金资助:
    中华护理学会2021年度立项科研课题（ZHKYQ202103）; 2021年安徽省护理学会科研课题立项重点项目（AHHL a202105）

Construction of cultural sensitivity-based palliative care program for pediatric cancer patients

SUN Li, HUANG Jia-li, HU Cheng-wen, GU Dao-qin, WEI Qi, FANG Min, LIU Qun-hui, XU Bao-hui   

  1. Anhui Cancer Hospital, Hefei 230001, China
  • Received:2022-11-18 Online:2023-08-10 Published:2023-09-08

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摘要： 目的 基于文化敏感性框架,构建儿童肿瘤患者安宁疗护方案,为开展儿童肿瘤患者安宁疗护提供参考。方法 通过文献内容分析法,初步拟订基于文化敏感性框架的肿瘤患儿安宁疗护方案草案,选取20名专家开展2轮专家函询,进一步修订形成基于文化敏感性框架的肿瘤患儿安宁疗护方案终稿。结果 第2轮专家函询专家判断依据、专家熟悉程度、专家权威系数分别为0.95、0.89、0.93。肿瘤患儿安宁疗护方案最终版包括5个一级指标（共同决策,症状管理,儿童安宁疗护教育,照顾者支持性照护,连续护理）,17个二级指标,42个三级指标,各条目重要性评分均>3.5分,变异系数为0~0.20,专家肯德尔和谐系数（W）为0.093（P<0.001）。结论 基于文化敏感性框架的肿瘤患儿安宁疗护方案具有较好的科学性和临床意义,充分尊重患儿和家属的多元文化,能够为肿瘤患儿安宁疗护实践提供参考依据。

关键词: 安宁疗护, 缓和医疗, 临终关怀, 儿童, 文化, 多元文化护理, 德尔菲法

Abstract: Objective To construct a cultural sensitivity-based palliative care program for children with cancer, and to provide reference for the development of palliative care for children with cancer. Methods Through literature content analysis, a draft palliative care plan for pediatric cancer patients based on cultural sensitivity was formulated. Twenty experts were invited to carry out 2 rounds of expert correspondence for the further revision of the program. Results In the second round of expert correspondence, the expert judgment basis, expert familiarity, and expert authority coefficient were 0.95, 0.89, and 0.93, respectively. The final version of the palliative care program for children with cancer consisted of 5 first-level indicators (co-decision-making, symptom management, hospice education for children, supportive care for caregivers, and continuum of care), 17 second-level indicators, and 42 third-level indicators, The importance score of each item was all >3.5; the coefficient of variation 0~0.20, and the expert Kendall’s harmony coefficient (W) 0.093 (P<0.001). Conclusion The palliative care program for children with cancer based on cultural sensitivity has good scientific and clinical significance, showing full respects for children and their families with different cultural background. It can provide reference for palliative care for children with cancer.

Key words: palliative care, end of life care, hospice care, children, culture, multi-cultural nursing, Delphi method

中图分类号: 

  • R473.72
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