169例先天性心脏病患儿父母感知脆弱现状及影响因素分析

doi:10.16460/j.issn1008-9969.2019.20.033

摘要/Abstract

摘要： 目的调查先天性心脏病患儿父母感知脆弱现状,探析其影响因素。方法采用一般资料调查表、感知脆弱程度量表、抑郁-焦虑-压力量表、领悟社会支持评价量表对169例先天性心脏病患儿父母进行调查,采用多元线性回归分析其影响因素。结果先天性心脏病患儿父母感知脆弱总分为（5.47±3.89）分,多元线性回归分析结果显示：患儿年龄、患儿父母年龄、焦虑、社会支持家庭维度进入回归方程（P<0.05）。结论先天性心脏病患儿父母感知脆弱处于一般水平,受患儿年龄、患儿父母年龄、焦虑水平、社会支持家庭维度的影响。医护人员应密切关注低龄患儿及年轻父母,及时评估患儿父母焦虑及社会支持水平,提供个性化、多元化健康宣教方式,注重疾病知识掌握程度反馈,拓宽患儿父母人际社交网络,促进患儿生理、心理健康良性循环发展,减轻父母负担,改善先天性心脏病患儿父母感知脆弱水平。

关键词: 先天性心脏病, 父母, 感知脆弱, 社会支持

Abstract: Objective To describe the perceived vulnerability of parents of children with congenital heart disease (CHD) and to explore its influence factors. Methods A convenient sampling method was used and 169 children with CHD and their parents from a tertiary grade-A hospital in Jiangsu were investigated by using general information questionnaire, Child Vulnerability Scale (CVS), Depression-anxiety-stress Scale and Perceived Social Support Scale to measure the perceived vulnerability of caregivers. Multiple linear regression analysis was conducted for analyzing the influence factors. Results The total score of the parents' perceived vulnerability was 5.47±3.89. Multiple linear regression analysis showed that the age of the child and their parents, anxiety, and social support entered into the regression equation (P<0.05). Conclusion The perceived vulnerability of parents of CHD children is at a mediate level and its influence factors include the age of the child and their parents, anxiety, and social support. More attention should go to the younger children and their parents. Timely assessment of the anxiety and social support, individualized and multiple health education methods and wider social network will benefit the improvement of psychological and physical development of CHD children and reducing the burden of their parents, thus to enhance the perceived vulnerability of the parents of CHD children.

Key words: congenital heart disease, parents, perceived vulnerability, social support

中图分类号:

R473.72

蒋琴, 张彩霞, 孟影, 陈梅. 169例先天性心脏病患儿父母感知脆弱现状及影响因素分析[J]. 护理学报, 2019, 26(20): 33-37.

JIANG Qin, ZHANG Cai-xia, MENG Ying, CHEN Mei. Perceived Vulnerability of 169 Parents of Children with Congenital Heart Disease and Its Influence Factors[J]. Journal of Nursing, 2019, 26(20): 33-37.

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