父母对于癌症儿童重返校园真实体验的Meta整合

周丽川, 黄海英, 陈蓉薏, 邓永芳, 肖新华, 林艳

护理学报 ›› 2025, Vol. 32 ›› Issue (10) : 49-54.

PDF(1049 KB)
PDF(1049 KB)
护理学报 ›› 2025, Vol. 32 ›› Issue (10) : 49-54. DOI: 10.16460/j.issn2097-6569.2025.10.049
循证护理

父母对于癌症儿童重返校园真实体验的Meta整合

  • 周丽川1, 黄海英2, 陈蓉薏1, 邓永芳2, 肖新华2, 林艳1,2
作者信息 +

Parental experiences of school reentry for cancer children:a Meta-synthesis of qualitative research

  • ZHOU Lichuan1, HUANG Haiying2, CHEN Rongyi1, DENG Yongfang2, XIAO Xinhua2, LIN Yan1,2
Author information +
文章历史 +

摘要

目的 系统整合父母对于癌症儿童重返校园真实体验的质性研究。方法 检索PubMed、CINAHL(EBSCO)、PsycINFO、Web of Science、Scopus、Embase、CNKI、万方,以及Google Scholar、百度学术灰色数据库,检索时限截止至2024年5月1日。采用JBI循证卫生保健中心发布的质性研究质量评价标准对纳入文献进行质量评价,采用汇集性整合方法对结果进行整合。结果 共纳入10篇质性研究,提取出23个原始研究结果,归纳为8个类别,综合为3个整合结果:父母对重返校园的态度随患儿病情进展发生改变;父母感知到的重返校园的障碍和促进因素;父母挖掘重返校园的潜在支持性资源。结论 癌症儿童重返校园涉及多学科、多专业、多机构,父母体验和需求呈阶段性、多样性、复杂性,建议护理人员根据父母的需求构建医院-家庭-学校联动计划,促进患儿重返校园。

关键词

癌症儿童 / 父母 / 重返校园 / 质性研究 / 系统评价 / Meta整合

引用本文

导出引用
周丽川, 黄海英, 陈蓉薏, 邓永芳, 肖新华, 林艳. 父母对于癌症儿童重返校园真实体验的Meta整合[J]. 护理学报. 2025, 32(10): 49-54 https://doi.org/10.16460/j.issn2097-6569.2025.10.049
ZHOU Lichuan, HUANG Haiying, CHEN Rongyi, DENG Yongfang, XIAO Xinhua, LIN Yan. Parental experiences of school reentry for cancer children:a Meta-synthesis of qualitative research[J]. Journal of Nursing. 2025, 32(10): 49-54 https://doi.org/10.16460/j.issn2097-6569.2025.10.049
中图分类号: R473.72   

参考文献

[1] Schilling EJ, Getch YQ.School reentry services for students with chronic health conditions: an examination of regional practices[J]. Psychol Schs, 2018,55(9):1027-1040.DOI:10.1002/pits.22154.
[2] Larcombe I, Charlton A.Children’s return to school after treatment for cancer: study days for teachers[J]. J Cancer Educ,1996,11(2):102-105.DOI:10.1080/08858199609528404.
[3] Georgiadi M, Kourkoutas E.Supporting pupils with cancer on their return to school: a case study report of a reintegration program[J]. Procedia Soc Behav Sci, 2010(5):1278-1282.DOI:10.1016/J.SBSPRO.2010.07.275.
[4] International Agency for Research on Cancer, World Health Organization. Cancer today[EB/OL]. [2023-06-29]. http://gco.iarc.fr/today/home.
[5] Wengenroth L, Rueegg CS, Michel G, et al.Concentration, working speed and memory: cognitive problems in young childhood cancer survivors and their siblings[J]. Pediatr Blood Cancer, 2015,62(5):875-882.DOI:10.1002/pbc.25396.
[6] Lewandowska A, Zych B, Papp K, et al.Problems, stressors and needs of children and adolescents with cancer[J]. Children(Basel),2021,8(12):1173.DOI:10.3390/children 8121173.
[7] 方加, 许丽玲, 刘春琴, 等. 白血病儿童化疗多维症状体验的同期症状网络分析[J]. 护理学报, 2023,30(16):1-6.DOI:10.16460/j.issn1008-9969.2023.16.001.
[8] Bonneau J, Lebreton J, Taque S, et al.School performance of childhood cancer survivors: mind the teenagers![J]. J Pediatr, 2011,158(1):21-27.DOI:10.1016/j.jpeds.2010.07.008.
[9] Sisk BA, Fasciano K, Block SD, et al.Impact of cancer on school,work, and financial independence among adolescents and young adults[J]. Cancer, 2020,126(19):4400-4406.DOI:10.1002/cncr.33081.
[10] Park M, Park HJ, Lee JM, et al.School performance of childhood cancer survivors in Korea: a multi-institutional study on behalf of the Korean Society of Pediatric Hematology and Oncology[J]. Psychooncology, 2018,27(9):2257-2264.DOI:10.1002/pon.4819.
[11] Kosola S, McCarthy MC, McNeil R, et al. Early education and employment outcomes after cancer in adolescents and young adults[J]. J Adolesc Young Adult Oncol, 2018,7(2):238-244.DOI:10.1089/jayao.2017.0045.
[12] French AE, Tsangaris E, Barrera M, et al.School attendance in childhood cancer survivors and their siblings[J]. J Pediatr,2013,162(1):160-165.DOI:10.1016/j.jpeds.2012.06.066.
[13] 汤静燕. 儿童常见肿瘤诊断治疗的进步[J]. 中国小儿血液与肿瘤杂志, 2020, 25(6):313-315.DOI:10.3969/j.issn.1673-5323.2020.06.001.
[14] Lee JA, Lee JM, Park HJ, et al.Korean parents’ perceptions of the challenges and needs on school reentry during or after childhood and adolescent cancer: a multi-institutional survey by Korean Society of Pediatric Hematology and Oncology[J]. Clin Exp Pediatr, 2020,63(4):141-145.DOI:10.3345/kjp.2019.00696.
[15] Ballantine K, Gooder C, Ryan E, et al.Listening to the experts: parents’ perspectives around infection risk and returning to education and social activities following their child’s diagnosis of acute lymphoblastic leukemia[J]. Cancer Rep(Hoboken), 2022,5(6):e1424.DOI:10.1002/cnr2.1424.
[16] McLoone JK, Wakefield CE, Cohn RJ. Childhood cancer survivors’ school (re)entry: Australian parents’ perceptions[J]. Eur J Cancer Care (Engl), 2013,22(4):484-492.DOI:10.1111/ecc.12054.
[17] Arpaci T, Altay N.Qualitative analysis of school reentry experiences of Turkish survivors of childhood and adolescent cancer: parental perspective[J]. Semin Oncol Nurs, 2024,40(2):151613.DOI:10.1016/j.soncn.2024.151613.
[18] Cyphert FR.Back to school for the child with cancer[J]. J Sch Health, 1973, 43(4):215-217.DOI: 10.1111/j.1746-1561.1973.tb01876.x.
[19] Joanna Briggs Institute.Critical appraisal checklist for qualitative research[EB/OL]. [2024-01-08].https://jbi.global/critical-appraisal-tools.
[20] 胡雁,郝玉芳.循证护理学[M].2 版.北京:人民卫生出版社,2018:77-80.
[21] Huang H, Yeh T, Liu H, et al.Parental experiences of educational supports offered during their child’s cancer treatment[J]. Child Care Health Dev, 2022,48(3):486-493.DOI: 10.1111/cch.12949.
[22] McLoone JK, Wakefield CE, Butow P, et al. Returning to school after adolescent cancer: a qualitative examination of Australian survivors’ and their families’ perspectives[J]. J Adolesc Young Adult Oncol,2011,1(2):87-94.DOI:10.1089/jayao.2011.0006.
[23] Hen M.Mothers’ and teachers’ experience of school re-entry after a child’s prolonged absence due to severe illness[J].Psychol Schs, 2022,59(6):1122-1134.DOI:10.1002/pits.22666.
[24] Pare-Blagoev EJ, Ruble K, Bryant C, et al.Schooling in survivorship: understanding caregiver challenges when survivors return to school[J]. Psychooncology, 2019, 28(4):847-853.DOI:10.1002/pon.5026.
[25] Leite A, Rodrigues AL, Alvarenga WA, et al.School reintegration of children and adolescents with chronic illness from the mothers’ perspective: a qualitative study[J]. Child Care Health Dev, 2023, 49(1):181-188.DOI:10.1111/cch.13031.
[26] Beeler D, Pare-Blagoev EJ, Jacobson LA, et al.Educating childhood cancer survivors: a qualitative qnalysis of parents mobilizing social and cultural capital[J]. J Cancer Educ, 2021,36(4):819-825.DOI: 10.1007/s13187-020-01709-1.
[27] Vanclooster S, Bilsen J, Peremans L, et al.Attending school after treatment for a brain tumor: experiences of children and key figures[J]. J Health Psychol, 2019,24(10):1436-1447.DOI:10.1177/1359105317733534.
[28] Wiener L, Kazak AE, Noll RB, et al.Standards for the psychosocial care of children with cancer and their families: an introduction to the special issue[J]. Pediatr Blood Cancer, 2015, 62(Suppl 5):S419-S424.DOI:10.1002/pbc.25675.
[29] 唐珏, 郭瑜洁, 阙文倩, 等. “重建自我”癌症患者重返工作适应性干预方案构建[J]. 军事护理, 2022,39(12):18-21.DOI:10.3969/j.issn.2097-1826.2022.12.005.
[30] Thompson AL, Christiansen HL, Elam M, et al.Academic continuity and school reentry support as a standard of care in pediatric oncology[J]. Pediatr Blood Cancer, 2015,62(Suppl 5):S805-S817.DOI:10.1002/pbc.25760.
[31] U.S. Department of Health and Human Services. Section 504 of the rehabilitation act of1973[EB/OL]. [2024-11-11]. https://www.hhs.gov/index.html.
[32] Leukemia and Lymphoma Society. Learning and living with cancer[EB/OL].[2024-05-22].https://www.lls.org/booklet/learning-living-cancer
[33] 曾庆威, 罗梦娜, 王菲菲, 等. 青少年癌症幸存者重返校园体验与期待的质性研究[J]. 解放军护理杂志, 2021,38(12):46-48,56.DOI:10.3969/j.issn.1008-9993.2021.12.012.
[34] 张小林, 章依文, 马骏, 等. 注意缺陷多动障碍儿童的医教结合干预模式初探[J]. 教育生物学杂志, 2019,7(3):149-155.DOI:10.3969 /j.issn.2095-4301.2019.03.005.
[35] 贺安妮, 熊振芳, 程艳然, 等. 以特殊教育机构为中心的自闭症儿童医教结合干预研究[J]. 护理研究, 2019,33(21):3770-3772. DOI: 10. 12102/j. issn. 1009-6493. 2019. 21. 029.
[36] 李欢, 黄文桥. 中美英新四国特殊教育相关服务的政策比较[J]. 教育学报, 2021,17(5):156-169.DOI:10.14082/j.cnki.1673-1298.2021.05.014.
[37] 国务院办公厅.“十四五”特殊教育发展提升行动计划[EB/OL].[2024-05-07].https://www.gov.cn/gongbao/content/2022/content_5674303.htm.

基金

国家自然科学基金青年科学基金项目(82100178)

PDF(1049 KB)

Accesses

Citation

Detail

段落导航
相关文章

/