目的 基于证据研制癌症患者症状沟通中决策辅助工具的使用科普手册。方法 以循证护理为指导,经系统文献检索、质量评价、证据提取以及级别判定得出最佳证据,确定科普作品的框架。通过对12例癌症患者进行半结构式访谈确定科普主题,对内容进行细化,形成科普作品初稿,并由10名专家进行外部评审。结果 所研制的科普手册详细阐述了在症状沟通中决策辅助工具的益处、获取方式,应用场景、使用方式、包含内容和注意事项。第2轮外部评审的满意度评分范围为81%至100%,变异系数为0至0.104。结论 癌症患者症状沟通科普手册的开发过程科学严谨,具有患者友好和广泛适用的特点,为未来癌症患者健康教育资料的开发提供了有价值的参考。
Abstract
Objective To develop a patient-friendly educational manual on the use of decision aids for symptom communication in cancer patients, grounded in evidence-based practices. Methods Guided by evidence-based nursing principles, a systematic literature review, quality appraisal, evidence extraction, and evidence grading were conducted to establish best practices and define the manual’s framework. Semi-structured interviews with 12 cancer patients were performed to refine the content themes, followed by iterative revisions to draft the preliminary version. External validation was obtained through reviews by 10 multidisciplinary experts. Results The finalized manual comprehensively addresses the benefits, accessibility, application scenarios, operational guidelines, core components, and precautions for using decision aids in symptom communication. In the second round of expert validation, satisfaction scores ranged from 81% to 100%, with coefficients of variation (CV) between 0 and 0.104, indicating high consensus. Conclusion The manual was developed through a methodologically rigorous process, emphasizing patient-centered design and broad applicability. This work provides a practical reference for creating future health education materials tailored to cancer patients’ needs, ensuring both scientific validity and usability in clinical and community settings.
关键词
癌症 /
症状沟通 /
科普手册 /
循证护理 /
决策辅助
Key words
cancer /
symptom communication /
public education manual /
evidence-based nursing /
decision aids
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基金
国家自然科学基金青年基金（72304131）
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