炎症性肠病患者饮食管理软件应用评价

doi:10.16460/j.issn1008-9969.2021.03.034

摘要/Abstract

摘要： 目的评价国内外炎症性肠病患者饮食管理软件,探究其基本功能设置及性能。方法在Android、IOS应用商店中搜索截至2020年3月发布的与炎症性肠病患者饮食管理相关软件,下载并安装后对软件基本功能设置及性能进行评价。结果共纳入18个炎症性肠病患者饮食管理相关软件,Android系统2个,IOS系统14个,IOS及Android兼容系统2个;版本1.X 7个,2.X 6个,3.X及以上4个,1个版本不详;纳入的均为英文软件。功能数2~15（6.8±3.9）个,软件功能主要涉及饮食记录（14/18）个,食谱参考(4/18)个,饮食咨询（3/18）个,饮食查询（5/18）个,饮食不良反应记录反馈（4/18）个,食物消化情况（2/18）个,个性化饮食管理设置（7/18）个,饮食教育（8/18）个。另有其他辅助功能如症状管理、情绪管理、药物管理、厕所定位、信息发送等。在纳入的软件中,50%有使用指导,33.3%提供了参考资料来源,44.4%有专业医护人员参与软件开发。结论市面上正在运营的炎症性肠病患者饮食管理软件均来自国外且质量良莠不齐,多数软件功能不全面,如缺少炎症性肠病患者营养摄入需求的评估模块,缺乏对患者饮食不良反应的关注,饮食推荐不符合我国人群饮食习惯等软件对患者实验室检查结果的关注度较低,难以判断饮食管理效果。另外,大部分软件的信息设计未循证相关指南,缺乏专业医疗人员参与,科学性较差,建议改良或开发适合我国国情的炎症性肠病患者饮食管理软件。

关键词: 炎症性肠病, 移动医疗, 饮食管理, APP

Abstract: Objective To explore the basic function and performance of mobile applications of dietary management for patients with inflammatory bowel disease(IBD). Methods Mobile applications of dietary management for IBD were searched by March 2020 in Android and IOS app stores. Results Eighteen English mobile applications for patients with IBD to manage the diet were included, including 2 in android systems, 14 IOS in systems and 2 both in IOS and android systems. Of the total, 7 were in Version 1. X; 6 in Version 2. X; 4 in Version 3. X and above and 1 Version was unknown. Totally,6.8±3.9 APPs had 2-15 parts, mainly about diet record (14/18), recipe reference (4/18), diet counseling (3/18), diet inquiries(5/18), record and feedback of diet adverse reactions (4/18), food digestion (2/18), personalized diet management (7/18), and diet education (8/18). There were other auxiliary functions, such as symptom management, emotional management, medication management, toilet positioning, information transmission, etc. Half of the 18 Apps provided instruction guidance; 33.3% reference sources, and 44.4% had professional medical instructors involving in software development. Conclusion At present, all APPs for patients with IBD are from abroad and most of the APPs have incomprehensive functions, such as without assessment modules for inflammatory bowel disease nutrition need, insufficient attention to adverse food reactions, unsuitable recommendations for Chinese patients, etc. meanwhile, without enough attention to laboratory examination results of the patients, without evidence-based related guidelines and participation of professional medical personnel in the development, most of the applications needs to be further updated. Applications suitable for Chinese patients are in urgent need.

Key words: inflammatory bowel disease, mobile medical, dietary management, APP

中图分类号:

R473.5

顾子君, 林征, 周美景, 顾芳臣, 罗丹. 炎症性肠病患者饮食管理软件应用评价[J]. 护理学报, 2021, 28(3): 34-38.

GU Zi-jun, LIN Zheng, ZHOU Mei-jing, GU Fang-chen, LUO Dan. Assessment of Mobile Applications of Dietary Management for Patients with Inflammatory Bowel Disease[J]. Journal of Nursing, 2021, 28(3): 34-38.

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